Connect
← Return to Polycythemia Vera: Just been diagnosed
Discussion
Polycythemia Vera: Just been diagnosed
Blood Cancers & Disorders | Last Active: 5 days ago | Replies (491)Comment receiving replies
@christina3444 Hello I’m in TX another hot state! Heat is hard on us PV people. I was happy to read your reply stating to hold off on the bone marrow test, of course if she’s comfortable with that. Luckily I’m keeping mine under control with the hydroxyurea and phlebotomies. The key is to get your labs regularly and know your symptoms. I get that lingering headache when my numbers get high. Stay positive!
Replies to "@christina3444 Hello I’m in TX another hot state! Heat is hard on us PV people. I..."
Connect
@nypara66 thanks so much for all the info it seems all the replies I’m getting are from the US so I’m wondering if anyone in Ireland has been diagnosed with PV ?as I’d love to hear from you !!! but the one thing I’ve noticed is that we all seem to be getting the same treatment which is reassuring as I would have thought you might have newer drugs in the US thanks again for all the info it’s reassuring to know I’m not alone in dealing with this