Hi H, @hkgood. I'm sorry that you struggle with symptoms relating to CSS and chronic fatigue. It must be very frustrating. How wonderful though that you've been diagnosed and know what you're dealing with. Learning about the why behind the what makes a difference. Now it becomes more about working on finding acceptance and implementing a management plan.

I have CSS also and am a graduate of the Mayo Clinic Pain Rehabilitation Center. @db72 nailed it in this earlier response -

"Life goes on, even if it's not what we expected".

As sad as it feels in the moment, a diagnosis doesn't mean the end, it means a new beginning of looking at life through a new lens. Recognizing there is still life to live even if it looks different than what we imaged. I had a difficult time with this which is what brought me to the PRC.

The PRC teaches ways of moderating and modifying physical activity through proper ergonomics and exercise, taking care of emotional and behavioral well-being through cognitive behavioral therapy, and the importance of less is more when it comes to medication and the central nervous system.

Knowledge is power as @slatesslates1 indicates. Agreed. Learn as much as you can about your diagnosis from reputable sites like Mayo Clinic or WebMD and truly understand the importance of self care and lifestyle change. One of my favorite sayings is -

"When you can't change what has happened, change the way in which you respond".

I'm glad to hear that many of your symptoms are settling. Rest assured you are not alone in your journey. I also grieved the loss of my job, heck, my identity. Please know that you are in good company here on Connect and have support.

What is the first step that you feel is most important in symptom management?