I am looking for others diagnosed with microscopic colitis

Posted by Kristi Motch @kristimotch, Jun 1, 2012

I am looking for others diagnosed with microscopic colitis. I'm new to the group and the condition. Any help or information about what my future holds would be appreciated.

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Profile picture for ndough @ndough

Out of curiosity, how does anyone make it doable to go to doctors appointments, stores, etc. To just leave the house? When I’m in flare up, about 6 feet from the bathroom is max for me!

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@ndough I’m still taking 3mg budesonide 4 days a week. But if I had a flare, I’m sure I would be in your same predicament.

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Profile picture for rebe410 @rebe410

@ndough

I make the appt in the afternoon and take at least 3 pesto bushel pills in the morning. !

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@rebe410 You mean pepto bismal? Your autocorrect is trying to take over, I think. The pepto bismal did always work great for me, but I can no longer take it. I’m on blood thinners (since a year ago) and Pepto has salicylic acid in it. One more reason I can’t take Budesonide - not for cardiovascular patients. And I also just found out that I should have called my cardiologist right away when it flared up. I did not know. But I really can’t get out to his office.

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Profile picture for janstur @janstur

@rebe410
Why can't they figure this thing out?! I feel like you basically have to give up most of the pleasure in eating and still...
I'm always cold so heat is not a trigger. Of course, I haven't been off Budesonide since I was diagnosed and prescribed. I did every other day for awhile and now I'm trying every two days. I have yet another UTI today, going to urgent care. I wonder if that's related.

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@janstur Of course you have an UTI. With mc, it is impossible to keep yourself clean, especially at night. The bacteria gets into your urethra and BOOM, another UTI.

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Profile picture for rebe410 @rebe410

@ndough
Wow I never thought of heat!
We live in AZ so it's definitely hot here!
Thank you I will watch next summer and see.

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@rebe410 I can’t even begin to imagine trying to stay cool in Arizona unless I just became a hermit. Wasn’t Dante from there?

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Profile picture for ndough @ndough

@rebe410 You mean pepto bismal? Your autocorrect is trying to take over, I think. The pepto bismal did always work great for me, but I can no longer take it. I’m on blood thinners (since a year ago) and Pepto has salicylic acid in it. One more reason I can’t take Budesonide - not for cardiovascular patients. And I also just found out that I should have called my cardiologist right away when it flared up. I did not know. But I really can’t get out to his office.

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@ndough
I did, me and auto correct are not the best of friends.
Sorry you can't take it, we are very limited on what we can take!
Hope you feel better soon!

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Profile picture for ndough @ndough

@rebe410 I can’t even begin to imagine trying to stay cool in Arizona unless I just became a hermit. Wasn’t Dante from there?

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@ndough
The summers can be tough but we love the rest of the year.
Not sure

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Profile picture for rebe410 @rebe410

@ndough
The summers can be tough but we love the rest of the year.
Not sure

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@rebe410 that’s about the way I feel about Texas, I guess. At least the weather.

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Profile picture for ndough @ndough

@rebe410 that’s about the way I feel about Texas, I guess. At least the weather.

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@ndough

Everywhere seems to have good and bad. Never have found a perfect place!

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Profile picture for ndough @ndough

@janstur Of course you have an UTI. With mc, it is impossible to keep yourself clean, especially at night. The bacteria gets into your urethra and BOOM, another UTI.

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@ndough You should look into a toilet-seat bidet, which is easy to install and hugely helpful. I've had mine for three years with no problems. They ran about $300 when I bought it -- could be more now. But if I had to replace mine, I would gladly pay 3 or 4 times that much. Truly a lifesaver for anyone with MC. Cleans gently and completely both front and rear. Check it out on the internet.

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Profile picture for mcdcm @mcdcm

@ndough You should look into a toilet-seat bidet, which is easy to install and hugely helpful. I've had mine for three years with no problems. They ran about $300 when I bought it -- could be more now. But if I had to replace mine, I would gladly pay 3 or 4 times that much. Truly a lifesaver for anyone with MC. Cleans gently and completely both front and rear. Check it out on the internet.

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@mcdcm That’s the first thing I thought of. Unfortunately, our house is old and there are no outlets in the bathrooms. ( There’s probably only one or two per room!) We would need to have the entire bathroom rewired. The lights are over sink and there is an outlet on the side of lights, but it only works when you turn wall switch on. And then there’s the 3 foot above floor minimum for bidet outlet rule. I don’t think we can afford it. It would be cheaper (hah) to buy a regular bidet.

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