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I am @ my sons house using his internet:) Also taking care of baby and big brother.Anyway, I had appts with a few Drs for followups and I am tired of seeing Drs! My pulmonologist told me that yes the nodules are a tiny bit larger(not much in his opinion) however that the rest of the CT Scan is now clear so he thinks I should just wait a few months and not take any fungus medicine and in July we can do another CT Scan and go from there?He also had me do a lung function test and although he said it was ok,but I was in the low side of 83% so maybe I should keep taking off the weight and retake test.Ive lost almost 30 pounds this year but its slow. I did tell him I am so tired of all these Drs and he didn't blame me at all.My Internist agrees but he does tend to go with the flow.I did not make the Ent Surgeon in Indy to have another vocal cord implant partly bc we got snow that day and I didn't want to be caught up in it on way back home and also bc I have had my pulmonoligist tell me the vocal cord has nothing to do with me feeling tired so just wait? I went to my Cardiologist(he did my original treadmill stress test so I like him and he now takes care of my blood pressure meds) Anyway he wants to do another treadmill test to see if any change(hes not pushing it,only suggests.He also thinks I should have a cpap machine at least try it and see if it helps.I had a home sleep study earlier this year and was told I needed one but I refused it!I start back to school this semester coming up and looking for a job too.I need to make a steady income and not just uber money! Sometimes I think I should forget about anymore college and just find a descent job! I hope everyone had a nice Christmas and a Blessed 2018!
Replies to "I am @ my sons house using his internet:) Also taking care of baby and big..."
Hi, @pattymac
CPAP machines are a wonderful invention! I was very surprised at how easily I took to it, given my claustrophobia and anxiety. At my first follow up with the sleep doctor, he was very impressed by how many hours I used it every night. I slept twelve hour nights for several weeks because I was so sleep deprived. I've been using one since 2002. I recently had a sleep study, and they tried nasal pillows, which they found to be more effective than the full face mask I'd been using all these years. I also changed from the CPAP machine to a BIPAP.
If a sleep study calls for it, I would totally recommend it. Not only will you have more energy, there are a number of things that are effected negatively by sleep apnea. I won't list them here - Google can do a better job than I can.
Please give it a fair trial. Some people take longer to get used to it and get discouraged, but I can't word it strongly enough - it could have a significant effect on your quality of life. There are several different masks available, so if you don't like one, you can try others.
I wish you well. I know how frustrating it can be to get the right diagnoses and the right treatment. Keep on standing up for yourself. Don't let doctors brush you off.
Jim
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Hi @pattymac
It is always good to hear from you, we so appreciate your post! It sounds as if you have covered a lot of territory since your last post in terms of appointments and decisions regarding the fungus meds, etc.
From what I understand the CPAP machine can be quite helpful - when you sleep more soundly - you feel better during the day. I guess it takes a while to get used to the apparatus, but it would not be impossible. You seem to have a desire to get well so most likely you would adjust to it.
Please keep in touch with us and continue to let us know how you are doing.
Teresa