Switching CellCept (mycophenolate mofetil) for Sirolimus (rapamycin)?

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Hi @rachel5239 Thank you for keeping me updated. One of my neighbors told me that her breast biopsy results took 8 to 10 days. Is that what they told you too?

@hello1234 they said 2 to 3 days. Expecting to hear something on Monday.

@hello1234 I do have breast cancer. Metastatic carcinoma. I have my first appointment next Tuesday so I will learn what my options are. A transplant patient does have a higher risk of getting cancer because of the drugs. Took 38 years to happen so not too bad. I am optimistic that they will figure something out.

@rachel5239 I am so sorry to hear this news Rachel. Please let me know what's going on after your Tuesday consultation appointment. Will your oncology team coordinate with your transplant team and possibly lower immune suppression a tad? (I assume all of this will be discussed on Tuesday along with all of your options).
Are you a member of the breast cancer support group on Mayo Connect too? After you find out the type of cancer, options, etc you may want to post there to get some good real-life feedback from the gals that have been through the different treatment options. It's a wonderful group of women.
Please keep me posted after Tuesday and do something nice this weekend to treat yourself. Love ❤️

@hello1234 I have appointments on Dec 8 to see. An oncologist and a couple of other appointments. I hope I get some direction on Tuesday. Thanks for your support.

Your experience is my experience. Lots of mohs surgeries. Years ago my dermatologist (with my transplant docs consent) switched out cellcept for rapamune. It didn't make a difference whatsoever. All immunosuppressants, no matter which one, deprives the recipient any defense from the uv rays. My recommendation is to avoid the uv rays by staying out of the sun, wear spf clothing, apply sunscreen, etc.
Best advice

@charliesilberman Thank you so much for sharing your experience with changing out Cellcept. That's very helpful. My dermatologist offered me blue light therapy or efudex to do regularly in an attempt to keep all the pre-cancers on my scalp quiet.
Did your dermatologist offer any of those treatment ideas, did you try any of them, and what are your thoughts?
Were your MOHS squamous cell on your scalp? That's what I keep getting.
Your idea about staying out of the sun and put on lots of sunscreen is excellent. Unfortunately, I live in Florida so even the inside of my sunny house and sunny car with lots of windows is a daily hazard. Please let me know your experience on any of the maintenance treatments that the dermatologist offers.
Thank you for sharing!

@hello1234 I've done it all. I have 4 tubes of efudex on hand I've had many blue light treatments. I've had approximately 23 mohs surgeries. My situation is exasperated by the fact I'm on immunosuppressants which deprive me of any natural defense to the uv rays. Btw I also live in Florida. Precisely Miami Beach.

@charliesilberman
Wow, you have really done it all! I received my kidney transplant five years ago and in the last year the skin cancer problem has really fired up. How long have you had your transplant? I am on Cellcept and Envarsus XR.
Did you find that one type of treatment was more effective than another in keeping things under control? I was thinking of trying the blue light?
How often do you go the dermatologist for check ups?
I have discovered that my dermatologist can not find the squamous. I find them by the way the feel.
Is your dermatologist able to find the squamous or do you find the problem areas yourself by the way they feel?
Thank you for sharing your experiences. It's very helpful to meet someone going through a similar issue with immune suppression meds.