Tymlos side effects

@beachesanddreams
Thank you…the more info the more I feel able to pursue questions without being to made uncomfortable…glad I found this forum.

@eileenvan I completed 2 years on Tymlos on August 20. I started with insomnia the following day, and it hasn’t improved since. I’m very worried because the sleeping pills don’t always work. I hope it is only temporary. I hope you recover from insomnia.

@loh I am close to stopping, too, because of the pain every evening. It's about a 6 or7 on the old pain scale...tough to ignore. Can't sit and watch TV with my husband; can't get comfortable no matter what I do. I am using Naproxen for my messed up back, but it doesn't do anything for the aches in the evening. How long did you have the pains before you quit? Does it ever improve if a person hangs in there?

YES. It is the reason I am tempted to quit this drug. What I wish to know is whether or not it can be expected to get better. Gonna be tough to tolerate pretty significant pain indefinitely.

@mamabear77 I had no idea that was even a side effect (doc never mentioned it) until I saw others here talk about it. The first side effect I noticed was severe head aches, but that went away after 2 or 3 weeks. The leg pain I endured for about a month I think. I couldn't get comfortable either, I was basically writhing in bed because my legs hurt so much. I felt so much better when I stopped, no more leg aches and I realized how tired and overall bleh I had been feeling for three months. This medicine has to be pretty serious to cause so many serious side effects. I am probably being foolish going off all medication, but I hate the idea of going back on.

@osteopatient2026 I’m glad I found it too. There are lovely people here sharing their experiences. And the support is wonderful too.

@mamabear77
you might stop the drug for a day or two and return at a lower dose. It really is a great medication. I think the dosing is a little high for many of us.

Tymlos …Second night report
I got injected again 7:30 pm Friday night 11-14
Had the same post heart rate increase for about an hour then it started to get lower by 9pm (1 1/2 hrs)
Awoke again with headache about 4 am accompanied by some neck pain this time. A little worse this morning…but feeling a little better now after moving around…it’s 6 am

After 3 months I still get a headache after my injection. Sometimes really miserable and sometimes it is minimal discomfort. For me this whole treatment for osteoporosis is really difficult on our health.

@gently thank you.