Lung nodules & scared!

Posted by pattymac @pattymac, Mar 19, 2017

March 1, 2017 at 7:44 pm
I had a Ct in December 2016,showed 3 nodules 6mm,5mm&4mm in right upper lobe! Last week I had a Ct bc of a different issue and ER Dr told me I had 1 nodule in my right upper lobe that was 8mm and subpleural and a tiny subleural nodule in my left lower lone and small scattered lymph nodes throughout the paratracheal region? What does this mean?Pulmononlogist called finally after a few weeks and finally radiology compared both Cts and was told I need Pet Scan which is next Tuesday. I feel frozen and numb! He said it was triangular in shape and something about right hiler? Gosh I can't even think. Advice please

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@pattymac

I went to Infectious Diseases Dr. yesterday and he has started me on a fungus med for several months and repeated blood work during time.I am starting to feel like a pin cushion.I am still coughing but not as much, its a deeper cough? He is thinking that I have Histoplasmosis? I haven't researched yet.I'm kind of afraid to but still will. I will come back and see later if any of you wonderful folks know anything about this or have any advice.I am so blessed to have you all on my side.I hope I can help someone else in the future.

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@pattymac

I went to Infectious Diseases Dr. yesterday and he has started me on a fungus med for several months and repeated blood work during time.I am starting to feel like a pin cushion.I am still coughing but not as much, its a deeper cough? He is thinking that I have Histoplasmosis? I haven't researched yet.I'm kind of afraid to but still will. I will come back and see later if any of you wonderful folks know anything about this or have any advice.I am so blessed to have you all on my side.I hope I can help someone else in the future.

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I am very concerned about this new medicine bc I am allergic to everything it seems.And I was doing a few different things at the same time yesterday and took all 3 doses at the same time instead of 3 times the first day! I was scared and called Dr, he called a pharmacist and poison control, then called me back and said I should be OK.If I had a problem to go to ER, which I know and so far so good.I was so embarrassed and scared bc Ive never done that before!The fungus medicine is called itraconazole tablets 200mg

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@pattymac

I went to Infectious Diseases Dr. yesterday and he has started me on a fungus med for several months and repeated blood work during time.I am starting to feel like a pin cushion.I am still coughing but not as much, its a deeper cough? He is thinking that I have Histoplasmosis? I haven't researched yet.I'm kind of afraid to but still will. I will come back and see later if any of you wonderful folks know anything about this or have any advice.I am so blessed to have you all on my side.I hope I can help someone else in the future.

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@pattymac Sorry, but I know ZERO about Histoplasmosis .. my knowledge stops at Mac and Bronchiectasis .. so sorry! Katherine @katemn Good Luck to you though!

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@pattymac

Linda, I cant afford an out of state Dr. Thank you though!

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Patty: Its a free video that was also referred on Connect. It is informative, hopeful and I believe Cornell & Mayo did some of the PF study tigethet. linda

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@pattymac

I went to Infectious Diseases Dr. yesterday and he has started me on a fungus med for several months and repeated blood work during time.I am starting to feel like a pin cushion.I am still coughing but not as much, its a deeper cough? He is thinking that I have Histoplasmosis? I haven't researched yet.I'm kind of afraid to but still will. I will come back and see later if any of you wonderful folks know anything about this or have any advice.I am so blessed to have you all on my side.I hope I can help someone else in the future.

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Pattymac...re histoplasmosis....you said you live in Indiana...right? Well years ago my husband lived there for about 14 years. Fast forward 50 years...to 6 years ago..we've lived in Wisconsin for 44 years ..he got pneumonia twice in one winter ( First time).the Dr ordered a CAT scan cause the chest xrays had "stuff" on them....as did CAT scan. Off to Medical center Pulmonologist he went. Who on first visit asked where he had lived in past. When he said Indianapolis....she said " Thats our answer...you have histoplasmosis... that area of country known for it." No treatment indicated but gets annual checks. His immune system so far aside from pneumonas is holding itsvown.
Caused by bird or bat droppings that are breathed in. Tdrell

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@pattymac

Linda, I cant afford an out of state Dr. Thank you though!

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Hi Patty, you can watch his YouTube videos free. Here is a link for his playlist of all his videos. I'm not sure of the exact one Linda mentioned. If you click the small square with the lines at the upper left of this video it should take you to the YouTube playlist so you can see the other videos he has.

John

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@pattymac

I went to Infectious Diseases Dr. yesterday and he has started me on a fungus med for several months and repeated blood work during time.I am starting to feel like a pin cushion.I am still coughing but not as much, its a deeper cough? He is thinking that I have Histoplasmosis? I haven't researched yet.I'm kind of afraid to but still will. I will come back and see later if any of you wonderful folks know anything about this or have any advice.I am so blessed to have you all on my side.I hope I can help someone else in the future.

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@pattymac, I just read that the doc is thinking about histoplasmosis. That caught my eye. When I was discharged from hospital to go home after transplant, I received a written statement (no references included).Here is some of what it said:

" ...The upper Midwest, including MN as well as those states along the Mississippi River and Ohio River Valley contains a fungus called histoplasmosis. Indiana has the highest concentration of this organism but we see it quite commonly in MN, MI, and lower WI.....considered one (of three-based on geographical region of country) of the opportunistic organisms and usually causes the most severe infections among those persons with weakened immune systems." (We are provided this information, so we can be aware when we travel)
and -
I remember a friend who was telling me about his dad coming to visit him here in Central KY for one summer, and helping on the farm. After dad returned home to his home state, he had a terrible lung/cough/breathing issue - until he mentioned he had spent time in KY - then the doctor knew what he was fighting against and was successful in treating it.
Hugs,
Rosemary

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Thank you:) I read that each region has a form of this with a different name but some form of mosisI hope it's curable

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@pattymac Hi, I've been thinking about you - hope you are doing well. Teresa

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