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Aggressive Bladder Cancer: Tips to help hold meds in bladder?
My husband is on his third Infusion treatment with gemcitibine . So far no real side effects or problems. The only thing he is having a rough time with is holding the drug in his bladder for the hour. We have to stay there as they have to leave cathedar in so meds stay in his bladder. Some people can get the infusion and leave but he cant hold it in so we stay.
It is uncomfortable in waves for him. It comes and goes.
We get through it as I sit with him and watch tv in his private little space @ the hospital.
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Heard a scientist say
When they take a biopsy of a tumor they are breaking it apart causing it to spread. Instead of taking a biopsy just have the entire tumor taken out.
Then test it. Seems to make sense to me.
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1 ReactionFinished with infusions. He missed 2 but dr did not add the missed ones to the schedule. Now we wait till 4/14 for cystoscopy and hope the infusions work.
I wish you and your husband the very best. This disease has a lot of vicissitudes. Never lose hope.
Thank you so much. Best of luck to you as well.
Never give up and stay positive! 🤗
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1 ReactionSo my husband had his cystoscopy yesterday
After all his treatments with gemcitibine.
There is a 1 cm tumor so he is having his 2nd Turbt in may. Very disappointed. .
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2 ReactionsThat makes sense to me.
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1 Reaction@jimg56
You said it depends on the RN doing the treatment and if things are positioned just right, he’s able to hold it. Can you give more details about that. I started Gem/Doc treatments and I’m having a difficult time holding them in.
@sirich
Hi,
I am not exactly sure but I find that depending on the nurse that does the
Treatment makes a difference. I think if the inserted balloon is perhaps just in the right spot he can hold the gem for at least an hour. They put a clamp on the tube also to help it from flowing out. With some nurses i can tell by my husbands face he feels nothing with other nurses he cringes. Some are slow and careful some are a little faster. He was able to hold in the bcg with no problem because it is a lesser amount.
Do they clamp off the tube for you?
Not sure it will help but worth a shot.