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New to the group - but have chronic fatigue?

Fibromyalgia | Last Active: Jun 23 5:21am | Replies (23)

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Welcome @hkgood . I’m so sorry to hear about your new diagnosis. Am I correct in assuming your diagnosis of Chronic Fatigue is ME/CFS? I have had ME/CFS (Myalgic Encephalomyelitis/aka Chronic Fatigue Syndrome) and fibromyalgia for almost 40 years.

I totally understand how difficult it is to come to grips with this diagnosis, the many lousy symptoms it produces, and also the grief over the losses that accompany such an illness.

ME/CFS can take many turns as it can wax and wane over the years. For me, I was the sickest (mostly bedbound) the first 3 years but later improved to about 70% for quite a long time. I was able to work part time from home (self employed), travel, enjoy concerts and socializing, etc,

I have personally known several people who fully recovered after 2-3 years.

Life does go on, even though it’s not what we expected. The best advice I can give is to pace your activities carefully around your energy budget and don’t worry about what other people think when you can’t do the things you used to do. It’s just impossible for them to really understand. Learn to enjoy what I call “Life in the slow lane.” I took up new hobbies/ interests at home that have been very rewarding that I never would have otherwise. And also, the people who truly love you will still love you. ❤️

For more information and support, the SolveMe Initiative is an excellent source. They have great articles you can share with others to help them try to understand. https://solvecfs.org/me-cfs-long-covid/

Also, the Phoenix Rising Forums has a ton of lively conversations by patients about research, coping, etc. https://forums.phoenixrising.me/

Please know that are not alone! And please know that in spite of this, it is possible to to adapt to a new normal and be happy again. Wishing you all the best!

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Replies to "Welcome @hkgood . I’m so sorry to hear about your new diagnosis. Am I correct in..."

@db72 what a beautiful response. This gave me some hope. Thank you for writing.