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Benign carcinoid tumor in bronchi tube
Hi I've been diagnosed with a benign typical carcinoid tumor in my bronchi tube in right lung was found when I went to A&E with pneumonia back in July of this year I've had 2 bronchoscopys 2 biopys which showed benign carcinoid tumor I was sent for ct scan mri scan and pet scan pet scan was clear I was put under general anesthetic as my lung specialist said he might be able to remove tumor by going down my throat instead of haven surgery but didn't work but he was able to take 40% of tumor out as it was blocking my air way that's how pneumonia set in the 40% he removed also came back benign carcinoid 1 lymph node was removed and checked also clear now I need surgery to remove the rest I'm so confused as doctor said its a benign tumor then Google is telling me it's a low grade cancerous tumor but doctor nor lung specialist said anything about cancer just said its benign doesnt benign mean non cancerous and can any one tell me how surgery went thank you bless you all xx
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@nannybb I've also forgot to ask if you carcinoid was typical or atypical how often do you need follow ups
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1 Reaction@californiazebra I don't think mine every healed because when doc was removing half of tumor he said where the callapse is is very narrow part of my lung I've also mentioned it to my GP she said its all over what's going on and once every thing is sorted the pain should go away
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2 Reactions@jessie1990 Wow...never ever? I only remember it really bothering me when I was a nanny for a family who repeatedly went to Maui. For some reason coming BACK always got to me. It was the realization I was in a slender "tube" that I could not get out of. You would think it would have hit me GOING there as well....big time anxiety set in 😵💫
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1 Reaction@jessie1990 Me either. Makes me sick.
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1 Reaction@jessie1990 Typical. They decided to remove part of my lower left lobe because the tumor started growing. They found 3 more (I think I mentioned that) post-op. I just saw my GP. and the surgeon last Monday. Neither one touches me, or tries to see where my pain is coming from exactly. I feel like they are leaving it up to the acupuncturist to figure out, and basically just patting me on the head. Very frustrating. My GP wanted me on Lyrica. I read all about side effects etc. I'm not going to do that. Not much different than Gap. Also, were you the one asking why you were being operated on for a "benign" tumor?
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1 Reaction@nannybb I forgot the check up question. I see the surgeon usually every 3 months, but because the pain has been so bad, I have been seeing my GP in between those visits. I go to the acupuncturist once a week.
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1 Reaction@jessie1990 That's beautiful 😍
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1 Reaction@nannybb nope never in my life I'm same my anxiety is so bad about every thing imagine me on a plane 🤣🤣
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1 Reaction@nannybb the slender tube really applies to the scan tube. I have had so many that I actually have fallen asleep though it is hard for me to sleep on a plane. Go figure.
@nannybb they think they might have to remove 2 of my lobes because where it's sitting was your surgery key hole or open I'm hoping mine is keyhole cause I believe there's a faster recovery