Benign carcinoid tumor in bronchi tube

Posted by jessie1990 @jessie1990, Oct 30, 2025

Hi I've been diagnosed with a benign typical carcinoid tumor in my bronchi tube in right lung was found when I went to A&E with pneumonia back in July of this year I've had 2 bronchoscopys 2 biopys which showed benign carcinoid tumor I was sent for ct scan mri scan and pet scan pet scan was clear I was put under general anesthetic as my lung specialist said he might be able to remove tumor by going down my throat instead of haven surgery but didn't work but he was able to take 40% of tumor out as it was blocking my air way that's how pneumonia set in the 40% he removed also came back benign carcinoid 1 lymph node was removed and checked also clear now I need surgery to remove the rest I'm so confused as doctor said its a benign tumor then Google is telling me it's a low grade cancerous tumor but doctor nor lung specialist said anything about cancer just said its benign doesnt benign mean non cancerous and can any one tell me how surgery went thank you bless you all xx

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nannybb | @nannybb | Nov 11, 2025

In reply to @jessie1990 "Hi guys is it normal to have lung pain wit typical carcinoid" + (show)

@jessie1990 Is this lung pain after surgery? That is what I am experiencing. I didn't know I had cancer (pain-wise). I knew something was wrong mostly because I was so tired .

jessie1990 | @jessie1990 | Nov 11, 2025

In reply to @nannybb "@jessie1990 Wow. My son was in Ireland 2 months (?) ago. He went with a friend..." + (show)

@nannybb ya ireland has some beautiful places I was born in Ireland and only went to see cliffs of moher like 3 years ago its a place in Co Clare people actually come to Ireland to visit this place some beautiful waterfalls up there also and west cork is also a really nice place

jessie1990 | @jessie1990 | Nov 11, 2025

In reply to @nannybb "@jessie1990 Is this lung pain after surgery? That is what I am experiencing. I didn't know..." + (show)

@nannybb I've had only half of tumor removed in Sept but I've had pneumonia the end of my lung is also callapsed from tumor blocking my airway and I've also had abcess in that lung

Zebra | @californiazebra | Nov 11, 2025

In reply to @jessie1990 "@californiazebra I've mentioned it before they said I possible its over my partial callapse the end..." + (show)

@jessie1990
Yes, that will do it. I had a partially collapsed lung after my biopsy and again after a tumor ablation. It caused a lot of pain, fatigue and shortness of breath. Luckily it healed in about a week or two each time as it was caused by the lung puncture.

jessie1990 | @jessie1990 | Nov 11, 2025

In reply to @jessie1990 "@nannybb I've had only half of tumor removed in Sept but I've had pneumonia the end..." + (show)

@jessie1990 can I ask what your carcinoid was.. was it typical or atypical

jessie1990 | @jessie1990 | Nov 11, 2025

I've captured this photo on a camping park in September 🥰

nannybb | @nannybb | Nov 11, 2025

In reply to @jessie1990 "@nannybb ya ireland has some beautiful places I was born in Ireland and only went to..." + (show)

@jessie1990 I would love to go. I saw more of the U.S. when I befriended a college professor. She loved to hike etc. Then I was able to travel with my rich clients as a nanny. I'm not as keen about getting on an airplane here lately. 🥴