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Lung nodules & scared!
March 1, 2017 at 7:44 pm
I had a Ct in December 2016,showed 3 nodules 6mm,5mm&4mm in right upper lobe! Last week I had a Ct bc of a different issue and ER Dr told me I had 1 nodule in my right upper lobe that was 8mm and subpleural and a tiny subleural nodule in my left lower lone and small scattered lymph nodes throughout the paratracheal region? What does this mean?Pulmononlogist called finally after a few weeks and finally radiology compared both Cts and was told I need Pet Scan which is next Tuesday. I feel frozen and numb! He said it was triangular in shape and something about right hiler? Gosh I can't even think. Advice please
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You are in my thoughts!linda
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2 ReactionsThis was my appt on portal for Wednesday's Bronchoscope with the Pulmonologist I just saw so wouldn't his office have put that diagnosis on there?
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1 Reaction@pattymac, This is for him to answer. In my experience with a variety of clinics and doctors, I have found that some portals and summaries are...well, less complete or clear than others. So, talk to him. Unfortunately this is a weekend, and Monday is a long way off - but it will come. Hard as this sounds, "Do not dwell on it."
We really do hear you. And we really do understand your frustrations. Keep in mind that most of us have been in your shoes. You are in our thoughts and prayers.
Try to focus on the positive this weekend. Do something nice for somebody in need and get your mind off of your troubling thoughts.
Until Monday.
Rosemary.
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5 Reactions@pattymac I have not posted before but have been following this discussion. I'm sorry you are going through a great deal right now. My fellow mentors, moderators and members have given you good advice.
It is so important to take care of yourself getting exercise and sleep as well as taking time for things you enjoy. Tell me about you. You say are getting ready to graduate in May. What are you studying? Do your children live nearby?
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5 ReactionsI'm earning my Associates of Science Degree and going on to an RN Program. Well at least that was my plan anyway. My kids are all over, married with families.
I'm much better with anyone else's issues than my own at this point. I am just not happy with looking at that information in my chart online, when this is the only Dr that could of put it there bc the other Drs aren't affiliated with this office? I've had my Grandaughters up here from Fort Campbell area and we went to movies tonight so a couple hours of not thinking about it. My kids all know and think it's something that can be fixed? I'm just so over this stress!
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4 Reactions@pattymac Hi Patty: I'm glad that you had a break by going to the movies with your granddaughters! That was the best prescription for you. We all need a break from our problems, but it's not always easy to do. By the way, you can get test results from your other doctors just by asking. Even if they don't have a way to do it online, they can mail you a copy. Best wishes as you wait for your next test. We are still pulling for you. Teresa
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5 Reactions@pattymac I wish I could "double-like" the above post by @rosemarya. Please read it and try to follow her suggestions. Teresa
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2 Reactions@pattymac Posting a question on your patient portal is a great idea that @colleenyoung suggested. You can even do that on a weekend and the doctor can respond when he returns to the office. None of us are able to give you answers to your medical problems, just suggestions on how to cope with the unknown and we can do this because we have been where you are. Blessings, Teresa
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3 ReactionsI have a 10 month Old grandson that is the joy of my life. I don't dwell on things that i will miss, like his graduation from high school any many other milestones in his life. My wife and I babysit him two days a week and he has developed a strong bond with both of us.. i try to enjoy the times together now and enjoy spending time with him. I can only do things that might hell me live longer but i really don't have any control over where IPF will take me in the future.Please try to concentrate on teethings you can enjoy with your family and you will be much happier
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7 ReactionsTerri - this is Pamela. I just read your post mentioning sleep apnea. My IFD doctor suggested I get a test for sleep apnea as he feels I may have this and may be part of the reason I wake up in the middle of the night in Idaho (5,600 feet) and cannot breathe. I take my rescue inhaler and am ok in about 30 minutes. It does not happen to me here in Boston, at sea level. I have both MAC and bronchiectasis, and am 67. I was told if I do have sleep apnea I will have to wear the device at night. Do you wear this device now? It sounds awful! I was also told that sleep apnea does damage to the heart, causing congestive heart failure over time. Anything you can share about your sleep apnea would be useful - thank you! Pamela