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MAC and Lung Cancer

Posted by bbeers @bbeers, Nov 4 7:06am

Good Morning,
I am facing the possibility of having Lung Cancer. I was diagnosed with MAC 2 1/2 yrs. ago and had no bad symptoms and still don't. My Pulmo Dr. has had me on a watch and wait. Recently I had two new spots show up on a CT scan. I went for PET scan last Friday. No results yet. I wonder if anyone has had this happen where your MAC resulted in Lung cancer? Thank you, Barbara.

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bbeers | @bbeers | Nov 10 7:02am
In reply to @pacathy "@bbeers I'm glad you're getting the biopsy anc wish you the best. Be sure to keep..." + (show)
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@bbeers I'm glad you're getting the biopsy anc wish you the best. Be sure to keep us updated.
I curious-if you don't mind sharing, which Penn doc do you see?
I don't have MAC, just bronchiectasis. I was thought to, but finally had a bronch a couple years ago, and it was negative so I haven't been in the IR group.

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@pacathy

I live near Albany NY so I see a Pulmonologist close to me not a Penn Dr. I have seen on Facebook that a lot of people who have had lung cancer go to the Memorial Sloan Kettering Hospital in Harrison NY. I will have to wait for the results of biopsy and then decide how to proceed. Thanks for caring.

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kathyjjb | @kathyjjb | Nov 10 11:28am
In reply to @bbeers "@kathyjjb Thank you Kathy. Have you had a PET scan? The reason my Dr. suggested it..." + (show)
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@kathyjjb

Thank you Kathy. Have you had a PET scan? The reason my Dr. suggested it was because it would show if anything was going on with the Lymph nodes, where the bronchoscopy wouldn't. Prayers for you too. Thanks for caring.

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@bbeers Oh, that makes sense. Sounds like you have a good doctor. Yes, I had a PET Scan but not recently. It was over 20 years ago. The Pulm Dr I saw ordered the PET and even before the results, sent me to a thoracic surgeon. Fortunately, I was seen at NJH before I saw a surgeon (can you imagine?). The doctor at NJH told me he was 99.99% sure that I had an infection. He told me: "you have hundreds of nodules, and you wouldn't be walking if it was cancer". He was a smart guy and since retired. It took me 3.5 years of anti-biotics and 5 years in all before I started feeling better. Then last year, the MABC diagnosis and now the new nodule. It's been a journey-like all of us. Thank you for your prayers, I will keep praying for you. Kathy

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