Connect
← Return to Lung nodules & scared!
Discussion
Comment receiving replies
Pattymac
My Ct scan was a mess Dec 2015! Nodules, a cavity that was 6 cm, lots of ground glass and other stuff. It LOOKED like infection so I just had to wait.....6 months later after it got slightly worse, they gave me a bronchoscopy and biopsy and discovered it was MAC. I was so nervous too, and had a very rough 6 months filled w sleepless nights and feeling very scared. Was still nervous after diagnosis but it was better.
Now I'm 8 months into MAC drugs and I'm feeling much better emotionally, although I still am a worrier. I think this website helps. When our health is uncertain it's scary. Try to do some things to relax. For me, that was keeping busy and balancing that with deep breathing and trying to get some exercise even though you don't always feel like it.
Please do make an appointment with a good pulmonary doctor. It sounds a lot like mine did and that's scary, but also they told me it looked "infectious"- there are antibiotics for infections and things they can do for you after you know what's going on. Stay with the Forum and know most of us here have felt numb and scared too....you'll be ok!!
Kay S
Replies to "Pattymac My Ct scan was a mess Dec 2015! Nodules, a cavity that was 6 cm,..."
Hi Kay: So glad you are on Connect! I completely agree with your words of wisdom.
I live by my paced breathing. This breathing practice has empowered my mind and
spirit and helped heal my body. I tell those crazy nodules to "be gone" and I also tell
my mind and body to "Stay Cancer Free" all while I'm in my deepest based breathing
frame of mind. I think "Blow lung disease away"...it's bee 9 years and 2 months. But,
whose counting? Ha
You deserve a big cyber hug
Linda
@pattymac, what is your first name .. Patty? Makes it so much more personal. I really know zero about "told me I had 1 nodule in my right upper lobe that was 8mm and subpleural and a tiny subleural nodule in my left lower lone and small scattered lymph nodes throughout the paratracheal region? " .. so I will not even begin to try to help you in that area .. but I do have MAC .. and I BEG of you NOT to "put the cart before the horse"!! You ALREADY have WAY enough on your plate to deal with before you even THINK about if you MIGHT have MAC .. Leprosy .. Prostate Cancer (I know .. you are female!) .. but THAT is my point! You do NOT need to worry about ANYTHING that is NOT on your plate RIGHT now! You have plenty to deal with at this very moment.
I SHARE @kaystrand, Kay's advice to find a GOOD pulmonologist in your are soon! In life you will find NO one will care about your body as much as YOU do .. YOU must take care of your body .. so IT can take care of YOU for the rest of your lifetime! Just as you took such good care of your children .. NOW take GOOD care of yourself!
How do you do find a GOOD Pulmonologist? FIRST gather together ALL your medical records so NONE have to be duplicated .. CT scans .. doctor notes etc: From my File Cabinet here is how I would do it .. how some of this helps you .. sending you a big hug in this tough time! Katherine
DOCTOR-FINDING GOOD PULMONOLOGIST
If was sitting in your shoes here is what I would do.
1. Google: PULMONOLOGISTS in your area
2. Google each doctor .. see where they went to school .. my opinion .. the better school they went to .. the smarter they probably are
3. look for doctors photos (can be years old) that appear young enough to have newer knowledge but old enough to have good experience
4. when you find that doctor.. GET an appointment .. THAT one will know how to treat you!
Mycobacterium Avium Complex. Infection
One additional thing i would suggest. contact your health insurance, most have nurses that are trained in helping people with issues it will save you money if you go to an in network provider that accepts your insurance. they can help yu find someone in your area and assist with setting up appointments and stuff like that. As others have suggested, you are your best helper. Good luck to you
What is ground glass and I read everything 10 times a day but it wouldn't let me post a few times already? I kept getting error occurred?
Ground glass is a abnormal finding on a Ct scan. I was just saying Ct scans show all kinds of crazy stuff, mine did and I'mOk. Finding a good pulmonary doc is key. It's so hard to go thru the worry but you do get through it!!Kay
what city and state do you live? maybe someone is close and can help you find a local Doc
Michigan city Indiana
@rayhastings, Ray, sorry to disagree .. but I'm a great believer in doing our own "due diligence" in checking our a doctor's bios and credentials .. just because one person "likes" a doctor .. frankly that doesn't do it in my book. I've just had to do this too many times with my husband's medical issues and seen the variations in doctors .. just my opinion. To each their own. Katherine
Connect
Thank you and I can't even get homework done bc I'm just a mess!What is MAC?