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Saline treatment?
Thank you so much for letting me join this group. I haven’t found anyone locally that has had what I have had. I’m 58 year old female from Australia and spent 4 weeks in hospital on intravenous meds and another 4 weeks at home with a picline after being diagnosed with both Micobacterium Abcessus & MAC and another 3 years on antibiotics. Fast forward, no more Micobacterium Abcessus, which is great, but nodule damage which is to be expected. 12 months on, now not on any antibiotics as weighed up the pros and cons and have bronchiectasis. Walk daily but still get quite out of breath and I really struggle with getting the flem up. I see people use Saline but don’t know how or what is required. Would love some tips
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Here's some basic information. Let us know what questions arise. Best of luck to you.
https://cavuhb.nhs.wales/files/cf-care/hypertonic-saline-7-and-nebusal-pdf/
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2 Reactions@livinlife2341 Welcome to Mayo Connect. Glad you found us. The forum is stocked full of valuable information from supportive members.
Sounds like you've been through the wringer but have arrived on the other side being infection free. Congrats! Indeed, bronchiectasis is a lifelong condition with the mainstay treatment being airway clearance. Fortunately, its treatment can be done at home. Hypertonic saline (either 3% or 7%) via a nebulizer. Perhaps the treating physicians can help you with this if you ask?
An excellent source of information comes right from Australia. It's the Bronchiectasis Toolbox. https://bronchiectasis.com.au If your local doctors cannot help you perhaps the toolbox people provide some local contact.
You may also like to read through the ABCs of bronchiectasis here in the forum.
https://connect.mayoclinic.org/discussion/resources-for-the-abcs-on-bronchiectasis-and-mac-ntm/
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3 ReactionsThank you
I've been using 7% saline via nebulizer for years, usually just once daily and only when I get a bronchiectasis exacerbation. In my current exacerbation, though, they have me doing it twice a day, with huff coughs. It works great, like an "enema for your lungs." 🙂 I've found the saline is making me a bit hoarse. I use the Vest after my morning nebs. I have a feeling they're going to have me do this perpetually, not looking forward to it, but it beats being sick...
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3 Reactions@kayjayay After several years of twice a day, I was able to cut back again safely. BUT...at the first sign of congestion I increase.
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1 Reaction@sueinmn
Has anyone heard of this new product that I have noticed on TV. It's for treating bronchiectasis. Called Brinsupri. Treat BE.com. I think it's in a pill form. Hal
@halford https://connect.mayoclinic.org/discussion/brinsupri-follow-up/