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Esophagus issues

Digestive Health | Last Active: May 24 11:45am | Replies (104)

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@danybegood1

@brie87144, Keep looking Brie. You're being proactive with your doctors. I hate the clinic now where i go. Ive been going there for 22 years. Now my cardiac doctors are in the same clinic. They must hate my guts when i try to be proactive, or maybe im doing it wrong. I do lots of research online and ive started trying to diagnose myself. hahaha So i ask the dr why dont we take a hep-c test? And she says well we did one in 2003 and if you havent had a transfusion or used needles i probably dont have hepc. So i say, no but ive had a million blood draws since then. I also said no disparagement to your clinic. But hepc was poo pooed by my dr, also dont thinkd i have lupus, which i had a test for in 2009. What? I cant have it at a later date? And ive also found out that you dont have to have the butterfly rash on your face. You can have the rash anywhere. They must think im a hypochondriac, or i want to be sick. No, no, no. I want to be better because my grown kids still need me so i have to find out whats going on with me so it can be treated. I have chosen new drs because of their attitude towards me or mistakes they have made in my care. A dr i had in 2003 prescribed quinine for my restless legs. I developed thrombocytopenia purpura. I had nausea, vomiting, and my body was beginning to bleed. Im not mad at my dr for this, im mad bc it took them 3 months to find it. My platelets were down to 5000 and nobody found it. I remember the phone ringing as i got back from a dr visit, Judy you have to go to the hospital now. The dr on call at the hospital saved my life, and whoever saw my platelet level. Im po that i have to be my own medical detective. The drs should be the ones to do this. Im so sorry for this long post which really turned into venting. Keep at it Brie. Remember, you are the best friend you will ever have. Love, Judy

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@brie87144

Let me tell you that having mental health issues on top of a whole list of illnesses and problems makes for a difficult time working with doctors in various specialties. My pain specialist has been an exception. Neurologists - I've been through 4 or 5, with no noticeable help. The last one looked like a really good one, but he moved a few weeks after I saw him. Dysphagia - I had an esophagram two years ago, and I just now got my pcp to do something about the findings. I have an appointment with a speech therapist, and I don't really know where to go from there. When eating became an effort, it became less of a pleasure. Beside esophageal dysmotility, I'm trying to deal with idiopathic peripheral neuropathy, arthritis, and depression, anxiety disorder, PTSD and suicidal ideation. Only God knows which one will be addressed first, and how addressing that will affect the other challenges. I try to live one day at a time, learn what lessons I can from the past, and anticipate improvement however it shows up. My foundation is God, who is love, and who loves me, and cares about what's going on in my life, and that whatever this life brings, I have a firm assurance of an eternity spent in His presence. Having a brain that isn't working right screws with all of my values and beliefs, but I'm alive today because of the foundation I have.

Jim