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My sympathies to all BP sufferers. I was diagnosed two years ago, after 4 months of undiagnosed suffering. (I was told to just stop scratching!) My BP is an autoimmune reaction to Nuvolumab which I took for two years because of a stage 4 melanoma outbreak. (Now tumor free!) I went on Dupixent immediately and it resolved the blisters on my scalp very quickly. (My bald scalp was the site of my melanoma tumor.) The itching never disappeared. I am now experiencing renewed issues with dry skin, (of course I moisturize daily) small red spots that sometimes bleed, roughness, scaling and peeling. I get some relief applying Gold Bond Anti-itch body lotion (over the counter). I wonder if my Dupixent has run its course. ChatGPT tells me a next line for refactory or post Dupixent treatment may be Doxycycline 100 mg and Nicotinamide 500mg. Has anyone had a post-Dupixent recurrence? anyone have experience with these drugs? Has anyone had a post-Dupixent recurrence?
Replies to "My sympathies to all BP sufferers. I was diagnosed two years ago, after 4 months of..."
@ricknorth
I’m only into the first six plus weeks of the Dupixent treatments and I’m not quite sure if it has been effective or in remission as the itching and discomfort has stopped. 100mg of Doxycycline has been part of the treatment the last two years. First twice a day and now once a day.
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@ricknorth
I have been on Dupixent for a month. My itching better. My blisters are not as bad. If they start they go away fast. My pemphigus vulgaris is horrible
My mouth hurts all the time. When the barometric pressure changes extreme body pain. They say nothing yet for the pemphigus. Anyone with this?