← Return to Typical Carcinoid Tumor in Lungs

Discussion
dzerfas avatar

Typical Carcinoid Tumor in Lungs

Neuroendocrine Tumors (NETs) | Last Active: Nov 22 7:28am | Replies (64)

Comment receiving replies
Profile picture for jhhaas @jhhaas

@pekoe01 I had my robotic assisted lobectomy two years ago at Memorial Sloane Kettering. Not sure how long my surgery was, but it started in the morning and by the time I was awake, it was evening. They kept me in the hospital for two nights, with the drain tube being removed on day two. I will say I was extremely uncomfortable for the first several weeks, nothing really touched the pain so I stayed away from the narcotics. I alternated Tylenol and Advil, but would take it half an hour before show the effects of the previous dose would not completely wear off. I also had to get up and walk around the house to help the pain, it sounds counterintuitive, but it did help. It also helped when I realized each week, it was a little better than the week before. But I was able to get out and about a little bit and then come home and rest. But I did not feel safe driving for about two months. It does take time but little by little it gets better. I could not wear a bra for three months, and it felt like there was swelling, pushing on my ribs from the inside, which they probably was. I would say for me that four weeks was a turning point, I felt well enough to take care of myself although I was still not driving. I live alone so that gives you some idea of how I was functioning. Two years later, I still have some numbness Under my ribs on the right side, but I can live with that. It sounds like you had some other issues that I did not have so it may take a little longer for you. I did have that nerve pain for a while, but that has gone away, thankfully. Hang in there, hopefully things will get better as time goes on.

Jump to this post


Replies to "@pekoe01 I had my robotic assisted lobectomy two years ago at Memorial Sloane Kettering. Not sure..."

@jhhaas
Thank you so much for your experience. I guess there is a light at the end of a tunnel. I didn't take oxy at rehab and only 2.5 mg at home three times. I took Tylenol, but could not take an NSAID because I'm on Eliquis. I can't take Gabapentin because it would trigger afib which happened during the surgery and it took three weeks to convert back. So all I can do is wait. Thanks again.