Tymlos side effects

Posted by loh @loh, Jan 29 8:25am

Has anyone else had leg/back aches with Tymlos? I've been on it since October and lately I've had terrible aches in my legs and lower back, especially at night. Is that one of the known side effects? Thanks!

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Profile picture for robe1018 @robe1018

I've been on Tylmos for 3 months now - thought was going pretty good with minor side effects that I could tolerate, but this week I stared getting dizzy. I also was put on Ciprofloxacin for a uti but I went off of it to see if that is causing the dizziness. I had terrible side effects from envenity. I'm frustrated once again. Has anyone experienced this happening to them?

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@robe1018, I’m so sorry to hear this. I know dizziness is a common side effect of Tymlos.

May I ask: were you taking the full dose, or were you taking a smaller dose and titrating up?

I ask because I’ve read here that women will go down a click or two until the side effect subsided.

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Profile picture for robe1018 @robe1018

I've been on Tylmos for 3 months now - thought was going pretty good with minor side effects that I could tolerate, but this week I stared getting dizzy. I also was put on Ciprofloxacin for a uti but I went off of it to see if that is causing the dizziness. I had terrible side effects from envenity. I'm frustrated once again. Has anyone experienced this happening to them?

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Hello @robe1018,

I combined your discussion with an existing discussion titled:

"Tymlos side effects"
- https://connect.mayoclinic.org/discussion/tymlos-side-effects-2/

The reason I moved your post here is so that your message and what you are experiencing with Tymlos would be seen by the many members discussion various experiences on Tymlos.

@robe1018, you mentioned you tried stopping another medication, was there any improvement? Have you been in contact with your provider to see if this side-effect is a known issue or not?

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@JustinMcClanahan Goodness. I got through about 10 of the comments. They were tough to read. 😢

Thank you for posting.

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Profile picture for beachesanddreams @beachesanddreams

@robe1018, I’m so sorry to hear this. I know dizziness is a common side effect of Tymlos.

May I ask: were you taking the full dose, or were you taking a smaller dose and titrating up?

I ask because I’ve read here that women will go down a click or two until the side effect subsided.

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@beachesanddreams I’m at 80. That’s interesting to take less and build it up. Thxs for the info. Good idea.

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Profile picture for robe1018 @robe1018

@beachesanddreams I’m at 80. That’s interesting to take less and build it up. Thxs for the info. Good idea.

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@robe1018 Good morning! I do want to say to check with your doctor first, of course, just so they know.

It just makes sense to me that the pen allows the patient to titrate for a reason, especially given the potential side effects.

If you do titrate, I wish you all the very best that you will feel well. Let us know how you do! 🦋

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I'm wondering if others have experienced an onset of insomnia while on tymlos or after finishing treatment. I just completed my two years on tymlos. After 2 days, I started having problems with insomnia. I take a sleeping pill and melatonin, but at least 2 days a week the pills don't work. My endocrinologist says it is not related with tymlos.

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Yes, I have the aching legs and joints, along with fatigue that is out of proportion to the day's activity. This is the one persistent problem I still have after a month on Tymlos. The other side effects have tapered of quite a bit, so I am hoping this will, as well.

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Profile picture for teclena @teclena

I'm wondering if others have experienced an onset of insomnia while on tymlos or after finishing treatment. I just completed my two years on tymlos. After 2 days, I started having problems with insomnia. I take a sleeping pill and melatonin, but at least 2 days a week the pills don't work. My endocrinologist says it is not related with tymlos.

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@teclena I had occasional insomnia. I’m off of it because of heart palpitations a month now. Still trouble sleeping but not as much warm wishes E

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Profile picture for beachesanddreams @beachesanddreams

@robe1018 Good morning! I do want to say to check with your doctor first, of course, just so they know.

It just makes sense to me that the pen allows the patient to titrate for a reason, especially given the potential side effects.

If you do titrate, I wish you all the very best that you will feel well. Let us know how you do! 🦋

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@beachesanddreams the pharmacist said titration wouldn’t help w side effects. Your body needs n expects the same dose.

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Profile picture for mamabear77 @mamabear77

Yes, I have the aching legs and joints, along with fatigue that is out of proportion to the day's activity. This is the one persistent problem I still have after a month on Tymlos. The other side effects have tapered of quite a bit, so I am hoping this will, as well.

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@mamabear77, I ended up stopping Tymlos because of the aching legs/cramps. I couldn't sleep as well, but I think it was because of the pain I was experiencing.

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