Thank you again Katherine. I will keep everyone updated about my April 4th visit with CARDIO/THORacic surgeon on April 4. It was difficult getting the ct scan, i wasnt feeling well from a hip/bursitis injection last Friday, where i had an allergy to it. I experienced extreme itching, cortisone flare, swelling along ankle and on top of right hand. Seems like ive gone down this journey with lung and increased inflammation, food allergies since i had several injections over a year ago. Its hard when so many things make it complicAted for doctors to diagnose and treat. Im picking up a short azithromyacin zpac today for new sinus infection. Im venting but know everyone understands.

Ill get the results tomorrow of ct scan and will definitely come here with the news. Is this thread in the mac group, i mzy have put it in wrong spot? Sincerely, jewel8888 julie

jewel8888 Hi Julie, sorry I have not answered sooner .. I have been dealing with a family situation .. but I'm back now! You are posting to "Cavitary lesion and wall thickness ?" If you wanted to post to my MAC and Bronchiectasis group (which of course I think is a WONDERFULLY supportive community 🙂 .. you could post at the bottom "Post Reply" at https://connect.mayoclinic.org/discussion/mycobacterium-avium-complex-pulmonary-disease-macmai/?pg=32#post-255827

Hugs and good luck on your appt! Katherine

I appreciate your checking on me!

I didnt know if our above posts could be moved to the MAC group or if i needed to start new thread

I go to Dr tomorrow, with report in hand. Its looking good with the lesion not increasing. It does say there is ground glass increasing bilaterally, likely from atelectasis and hypoventilation. Also that this is stilll of unknown origin....., neoplasric, infectious, imflammatory. Its hard trying to remember what to ask but i think with all ive learned from you and the group i will be ok. This surgeon is chief of the medical univ. Of South Carolina.

Thank you. Again, i will make sure to share afterwards.

Julie

Hi Julie, I also go to MUSC. I used to work for the Department of Surgery. Do you see Dr. Flume for your lungs? He did not recommend surgery for me although I have two cavitations. I also see Dr. Huitt at National Jewish who was leaning toward surgery but decided to cancel/postpone since the lesions are remaining stable.

Jen BWe are in the same boat! My doc was all for surgery which they do more for cavities, but since my Ct showed my cavity had gotten so thin walled it looked almost disintegrated she said the surgeon and she(pulmonary doc) would not want to do surgery. As good as VATS surgery is, I guess never have any surgery if there are less invasive treatments. At one time I was hoping for surgery, now relieved I didn't have it, nor did you.Yay for us! Take care Jen....Kay S

Your reply means so much. As i replied above im hoping to reveive antibiotics and see if they continue to make ne feel better. Im glad the decisions are in our hands! My vest wishes uou contonie to feel better.

Julie ,⚘

Hi Julie, I was wondering who you see at MUSC. Also, do you live near Charleston? I live in Mount Pleasant.

Kate, yes we do seem to be traveling a similar path in our diagnosis. I have a CT Scan scheduled in about a week and a half then a visit with my local doc followed by a visit to NJH, May 1. If CT Scan is still good I hope to be set free for awhile since meds stop April 30th. Whoohoo!

Dr Denlinger, go at 12 today. Sorry thought i said that last night, guess i was groggy. Lol.

@jenbalock. Ill be seeing Dr. DENLINGER, chief cardiothoracic surgerym. This will be my second visit with him. Im in Myrtle Beach, he travels this way to see patients but surgery is at MUSC if needed.