Newly diagnosed with RBD

Posted by jennh603 @jennh603, Sep 13 10:33pm

I've just been diagnosed with RBD after falling out of bed 2x in a week. I've been punching and grabbing my poor husband in my sleep for years but never thought anything of it.
I'm obsessing about the potential for follow on neurological issues. Any memory issues and I think it's a sign. How do others deal with this?

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That's very interesting about the venlafaxine. I have been taking it for about 10 or so years but only at 75mg for the last 2 years. I was having other side effects from it so we added buprofin? (Welbutrin) and lowered the venlafaxine dosage. I'll pose this question to my neurologist! Thank you for sharing!

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Profile picture for looplu79 @looplu79

@j0nathan26
I have a history similar to yours
I am taking Melatonin 5 for two years and this stopped the symptoms described
immediately
I was taking Venlafaxine 150mv for 20 years and for the past year have been weaning myself off
I had read that RBd can be caused by Venlafaxine
I also read that some Mayo specialists do not think RBD will automatically lead to PD or Lewis Body as my doctor in UK suggested
I am 80 and showing no sign of it presently so looking forward to a normal life expectancy

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@looplu79 thanks for the reply. Could I ask how long since you've been diagnosed? Couldn't decide if you meant 2 or 20 years? Glad to hear you're still going strong at 80!

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Only diagnosed 2 yrs ago
Had no symptoms until 9 months prior
Then had shouting leaping from bed etc
It coincided with a period of upheaval in my
Personal life

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