Long Covid symptoms

I understand what you’re going through. I’ve had Long Covid for 3 years now and my symptoms right now are loss of taste and smell and body tremors if I overdo it. I had other symptoms like really bad brain fog, insomnia, body tremors (lessening), stuttering and balance issues. Sensory issues were also a problem, but seem to have subsided. These all have gotten much better with time. I also had 7 Stellate Ganglion Block injections and they helped with my PTSD/Anxiety a lot. I’m currently having Green Violet Light Therapy by my Chiropractor and this is suppose to help with taste and smell. Since starting this laser treatment, I have smelled certain things for more than just 1 whiff! It’s not daily, but more than before, so I will continue with this treatment as it’s on $20.00 per treatment. I think time is what we all need and hopefully not too much of it! I’d like to get on with my life as well.

Hi @denny58. So many have varying symptoms and severity with common theme. Battery analogy. Body can only do so much without running out of power and then bed to recharge. My neuro PT had me set alarms to not overextend doing only one small task such as only wash one dish then rest couple of hours and repeat in that manner for even typing text, reading a text, brush teeth,…..Should not feel the effort using battery and build up slow over weeks, months, years to keep progress without backsliding crashes and creating sensory overload🙃 Hope helpful and quickest healing to you 🌈

Hi @denny58. 67 years old also and have been dealing with Long COVID symptoms like yours since 2022. Was working full time until 2023 when forced to retire. I have sensitivity to screens, light in general, sounds, smells and struggle with chronic fatigue and brain fog. I have tried conventional and non conventional medications/supplements/treatments. I am better..But…still struggling with all the above. Currently I take a list of supplements ( will be glad to provide if you want) accupuncture weekly, massage therapy, weekly IV’s electrolytes & Ozone. I pace myself, limit conversation & chores which is hardest when I “feel good” because afterwards I crash to bed. I am involved in a Support group and talk therapy which helps me to be with others who are navigating this illness. I am a RN so have researched, been involved in 6 studies and continue to seek ideas. The hardest part? Some of my family & friends do not understand & cannot sympathize. I have explained and don’t waste my energy anymore. Sometimes I tell them/encourage them to look it up and learn about this debilitating condition that is affecting millions around the world. I wish you continued healing and peace in your life💖

I get it. Same issue at home. Don’t quit. @suefish

@lkirnbauer
Im contemplating gettin the ganglion block but am very nervous about the potential risks. How was it? Where did you have it

@robinrm
Done and how long did it last. It’s 3k each one. Does the symptoms lessen each time? Praying for a miracle🙏

@ncnurse1
Im in the same situation, I got worse after gallbladder removal. I feel very isolated and lost most of my friends.
I would like to know what supplements you take. Im on a boatload. Is there a private way to share telephone #s.
Wish you the best. 🙏

@robinrm There is really nothing to be nervous about. The Stellate Ganglion Block injection are of Lidocaine, which is a pain blocking medication, that is injected into your parasympathetic veins in your neck, guided by ultrasound so they see exactly where the injection is going. You will have a Horner’s Syndrome happen to the opposite side where your eye will droop for a while, but will return to normal by end of day or next day for sure. It’s not painful, but I ask for a twilight sleep because I get nervous before the procedure as well and my blood pressure shoots up! I live in the suburbs of Chicago, so I went to the Pain Management Clinic at Northwestern Hospital in Chicago on Erie. It’s worth a try and what they did for me was take my PTSD/Anxiety down and that is a blessing. Still waiting on getting my taste and smell back, but many of my side effects from Covid are dissipating, so I’m hopeful that too will come back.🤞

@lkirnbauer thank you for your reply. I wish you the best of luck. How long did your SGB last the first time? I know it’s very expensive and insurance does not pay for it. Do your symptoms decrease each time you get the injection? I thought I had long Covid the last two years ago and since my gallbladder came out last November, my symptoms have just kept getting worse. The surgery and anesthesia did something to me. I am seeing a functional medicine doctor and I am on a lot of supplements. It’s a long process.

@lkirnbauer thank you for replying and sharing your health journey Sometimes knowing others struggle with this as well helps as well as hearing their strategies how to cope.
I always thank God for the good days and pray on the challenging days.