Anyone lost the ability to walk due to peripheral neuropathy?

@hookedongolf2004 yes it started with horrible pain in my feet and I don’t take the medications. I just keep moving if I sit down they flare up but now I’m noticing them. My legs are getting weaker and they have an achy feeling and I get cramps, but I go to the gym. I try and do exercise exercises. I try and keep my muscles moving and find it every day. I am still playing golf because I move constantly and when I move constantly, I have neuropathy, but I don’t hurt but at night it’s miserable and every single night at 2:30 to three I wake up it gets very harsh and I either get up and go to the computer or I start walking around and in about an hour. I go back to bed and be able to wake up at 8 o’clock and start the routine all over again I had a fall at a store that took bankruptcy and so I will not get any relief financially, but I am headed for Florida next Sunday to go try scrambler payment therapy when I get back. I will let you all know if it helped me or not my concern is that if they treat me only in the daytime that I may not be able to show them how bad this is they really need to stay with me at the hotel get up and go to bed for him to get a real good opportunity to see how this works. Walking is becoming difficult in the morning very until I get moving and I just won’t stop moving.

@jedge54
That sounds good.

Hello, jillb329 (@jillb329)

I can understand how a phrase like the "new normal" might also be misleading. It might imply that all of our lives we've been living ––what can I call it? the "standard normal"?–– that all of our lives we've been living the standard normal, and now that we're "up" in years and beset with some sort of chronic disease, we're suddenly being tasked with living the "new normal." I believe it's possible that everyone's life, from start to finish, is a succession of normals, one "new normal" after another, each requiring some measure of adjustment and acceptance.

What works for me? That's a great question. Staying in motion. That might be it. If I'm at rest, thinking, and my thinking starts to make me anxious (worried), I might just get up and do something (clean the kitchen sink?). If I'm doing something and I'm not enjoying it, I might declare a 30-minute time-out, sit down and go back to reading a book I'm enjoying reading––and not let myself close that book until the full 30 minutes are used up. Stay in motion. That nay be one thing I try always to do. For the sake of variety: mind variety, body variety, and, if possible, spirit variety. From one to the other. When one begins to go stale, move on to the next. I hadn't given this much thought, until you asked (What works for me?), but this may be it. It's a great question. Thanks for asking!

Cheers!
Ray (@ray666)

Hello, Wendy (@wenner)

I can imagine how tough it is to have to give up driving. I haven't given up yet. That day will come, though. It does for all of us. Despite my neuropathy, I still have reasonable sensation in the bottoms of my feet, and despite the balance woes my neuropathy gives me when I walking about, still in the driver's seat still has me feeling secure, as secure as I ever had. Friends are always trying to go the extra mile for me (that might be a pun!), as one did only a few hours ago when he invited me to a birthday party on the outskirts of Denver and offered to give me ride to and from the party. I told him thank you but that I preferred driving my own car. That's not about me being bullheaded. It's about how my neuropathy has me not able to remain comfortably in one place for too long, especially when all the available chairs are low, low to the ground and my knees have enough walk-around difficulties without having to life my bod out of chairs that are low, low to the ground. 🙂

I hope you're having a wonderful day.
Cheers!
Ray (@ray666)

@carolynhughes75
I am going to start a new thread for the drug trial

CIDFP. Chronic Inflamatory Demylanating Polyneuropathy.
I have zero pain.
My issues: Fatigue , Balance, Overall muscle weakness
I will start a new thread on my drug trial

@ray666 Hi Ya Ray, we both seem to be going down the same path. 2016 we are assuming mine started, for years it seemed to come and go so I did nothing. Then it really flared in 2024 and has given no relief since. Not long now and I'll be a Bag Lady. Wheelchair all terrains, Wheelchair for indoors, Walkers for town, indoors and out in garden. All new wider paths around my little abode. Shower revamp with hand-held shower head and it goes on.... but life goes on. Yesterday in our SS&A Club a chappy came over to tell me the battery in the chair I was in would last 12 years. Now that would have to be a plus hey!?? Cheers and keep driving Wendy @wenner

Mind, determination and physical therapy can change many things. If paid can be controlled by something as simple as ibuprophin, the best option may well be just to keep trying. My left leg is almost useless but the right leg is able to lead and compensate. I can but don't often try to walk (without cane or walker) by holding on to furniture or walls but it is frustrating. I found my rolator is the best choice for me. I have ramps at the house instead of steps and as long as I hold on to the rolator I seem to be able to handle most chores including lots of gardening in my formal garden. getting in and out of cars is possible only if the auto is fairly high (I canot get into sedans at all) and has a strap to grab. It's been a real eyeopener to find myself unable to go many places (I cannot maneuver steps at all) and unable to do things the way I have done them in the past but determination and creative thinking make life still rewarding.

Hi, Wendy

I can remember how stumped I was when I first started talking to doctors about my balance concerns. They'd all ask, 'When did this start?' I felt the only answer was, 'I dunno.' But then I thought back to the first years after I'd retired. To keep myself 'involved.' I joined the local writers' association, offering my services as a volunteer. I suddenly remembered some of those nights of doing volunteer work, carrying tables and folding chairs to prepare large group events, remembering how puzzled I was to have 'moments' of balance wonkiness. These moments were never of long duration. They'd pass, not to reoccur for several days –– so of course I never said a word to my primary doctor. It wasn't until late 2021 and early 2022 that I started to notice my balance becoming more of nuisance, no longer occuring in 'episodes' but with me all day long.

Ray

@ray666 Hi Ray
Could it be that you are confusing balance issues with PN? PN deals...and begins with...the feet, producing numb and burning feet. Yes, there are balance issues that come with unstable feet. In talking with other Seniors, and researching the subject, poor balance seems to come with age. Having unreliable feet adds to the balance issue. Have you checked for side effects (dizziness) of your medications or injections?