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Symptoms of PD, seeking answers. Anyone experiencing the same?
Parkinson's Disease | Last Active: Nov 16 3:51am | Replies (29)Comment receiving replies
@jatonlouise - I have had the symptoms of Parkinson's Disease for 15 - 20 years, but I was blaming them on Ischemic Heart Disease, and Hypothyroidism. My wife told me I was walking differently and said she thinks I have Parkinson's Disease. I consulted with Dr Google and asked for a list of Parkinson's Disease symptoms. There was a list of about 30 symptoms, and I had about 25 of them. I got to a neurologist that specializes in Parkinson's. Within 30 minutes he confirmed that I do have Parkinson's. Now, 2 months later I'm still having all of the same symptoms while taking Carbidopa - Levodopa.
One more month for a follow up appointment.
Best of luck to your on your journey of getting a solid diagnosis and treatment.
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@barryl Thank you for your concern Your experiences make mine look like a walk in the park. It only 3 years to get my idiopathic PD diagnosis (Advanced Stage.)All my doctors hsve been splendid and my symptoms are under control. I'm using a new treatment. I still take some pills but my main med I have a pump that delivers my l- dopa subcutaneously. It was approved bt FDA in October 2024. And it's primarily for folks with Advanced stage PD. I got my pump in February 2024 because I live in Germany and it was approved for EU in January 2024. My neurologist was on the medical board that evaluated it for release in the EU, so that gave me a bit of an edge. The company that makes it is ABBvie. Search for the company name and 'subcutaneous l-dopa pump. I don't know whether US health ins. My meds for the pump alone are
€ 6,000 a month. My German insurance pays 100%. I don't know how US insurance is dealing with it, but I'm grateful that I'm here. I'll be glad to answer questions if I can. I love my pump .