7 weeks after Prostatectomy and still waking up a lot to pee.

Posted by albcan @albcan, Feb 15, 2025

Hi Everyone,

It’s been seven weeks since surgery now and everything is going well, pretty much all healed up and back to normal daily activities etc but still wake up three of times a night to pee.

I do drink a lot of water during the day but stop at 5PM, I was wondering other people’s experience ie is this normal and just the way it is now going forward or what has your experience been.

Not complaining just had assumed once the prostate was gone this wouldn’t be the case anymore.

Thanks in Advance.

Al

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Profile picture for kjacko @kjacko

My situation is somewhat different. After my surgery in 2023, I had ZERO incontinence issues. My surgeon said I was one of the “lucky” 10%. However, even today I still pee a lot. Sometimes I will get up 3 times a night. I will say I don’t have that urge feeling like I had with my enlarged prostate. That feeling got in the way of my normal daily routine . My surgeon says it could be a number of issues: some people just produce more urine(I have since I was a teen), or the bladder can be weakened slightly after surgery. He told me to really try and pee less, especially while sleeping. It has been helping. I really believe some of my problem is psychological. BTW I’m 73 and doing well. Hope this helps. Best wishes.

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@kjacko
You might try Myrbetriq or Gemtesa to stop that urgency and need to get up three times at night. I get up one time since I started taking those pills. They also help with incontinence..

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Profile picture for jeff Marchi @jeffmarc

@kjacko
You might try Myrbetriq or Gemtesa to stop that urgency and need to get up three times at night. I get up one time since I started taking those pills. They also help with incontinence..

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@jeffmarc Are those OTC or prescription. BTW, I hate taking pills.

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Profile picture for kjacko @kjacko

@jeffmarc Are those OTC or prescription. BTW, I hate taking pills.

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@kjacko
They are prescription drugs that are used to stop the urgency at night. I found Myrbetriq really helpful. It does cost about $1300 a month but if you have hit the $2000 Medicare limit, you pay nothing.

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I was getting up a lot to pee at night (small amounts), both before and after my RALP, and medications were no longer helping. Two things that helped me was avoiding foods and beverages that are listed as bladder irritants. The 2nd was I had occasionally taken a Benadryl tablet or a Tylenol PM at night, I stopped taking those completely and that helped as well. Only getting up once a night instead of 3 or 4 times.

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Profile picture for jeff Marchi @jeffmarc

@kjacko
They are prescription drugs that are used to stop the urgency at night. I found Myrbetriq really helpful. It does cost about $1300 a month but if you have hit the $2000 Medicare limit, you pay nothing.

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@jeffmarc Thanks for the info.

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Profile picture for vcsurvivor59 @vcsurvivor59

I am almost eight weeks from my prostatectomy with very little progress on my incontinence. I have been going to physical therapy to work on Kegels and do them every day as well as my normal exercises. But the flows come out of nowhere when I just stand or walk. I can stop the flow while standing over the toilet, but when I think I'm done, I walk away and start flowing again. It's not like I just feel the urge where I have a chance to contract my pelvic floor. The urine just leaks out before I can do anything. This is beyond frustrating as I would think it would be better by now. Night time is no better where I wake up multiple times either feeling I need to go or worried that I should go. My urologist just keeps telling me to do the Kegel exercises and it will get better, so I keep hoping and praying it does soon because I am doing all that I can with little to show for it.

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@vcsurvivor59 hi
I had my surgery on 12 Sept catheter out on 19 sept I start the count from that day so I am 7 and a bit weeks.
No prob with erections but was incontinent ie first week in pull ups or heavy pads it has improved where I wear light pads ie grade 1, 2 or 3. I was doing kegels as shown by pelvic floor therapist but I discovered a kindle book a week ago by a therapist from Melbourne in Florida ( I live I’m Melbourne Australia and it is fantastic.
Her name is Vanita Gaglani.
The book has a comprehensive 10 week program to continence ( I am starting at week 3 )
The exercises are much more comprehensive including 5/6 different Kegels as well as other exercises for the bladder and pelvic floor muscles.
When I started I was dry at night getting better in mornings worse in afternoons and when walking etc
I also had urgency and frequency.
These are improving. She also deals with diet and avoiding bladder irritants.
And in week 3 or 4 sitting with plastic and a towel at home without pads ( you will get wet but this is training so as to help get over reliance on pads.
She also stresses a limit on total Kegles per day
The book title is Life after Prostatectomy maybe worth a look.
The other treatment I would look at if still struggling a 5/6 months is the Emsella chair look it up
Best wishes for recovery

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Profile picture for pezzy @pezzy

@vcsurvivor59 hi
I had my surgery on 12 Sept catheter out on 19 sept I start the count from that day so I am 7 and a bit weeks.
No prob with erections but was incontinent ie first week in pull ups or heavy pads it has improved where I wear light pads ie grade 1, 2 or 3. I was doing kegels as shown by pelvic floor therapist but I discovered a kindle book a week ago by a therapist from Melbourne in Florida ( I live I’m Melbourne Australia and it is fantastic.
Her name is Vanita Gaglani.
The book has a comprehensive 10 week program to continence ( I am starting at week 3 )
The exercises are much more comprehensive including 5/6 different Kegels as well as other exercises for the bladder and pelvic floor muscles.
When I started I was dry at night getting better in mornings worse in afternoons and when walking etc
I also had urgency and frequency.
These are improving. She also deals with diet and avoiding bladder irritants.
And in week 3 or 4 sitting with plastic and a towel at home without pads ( you will get wet but this is training so as to help get over reliance on pads.
She also stresses a limit on total Kegles per day
The book title is Life after Prostatectomy maybe worth a look.
The other treatment I would look at if still struggling a 5/6 months is the Emsella chair look it up
Best wishes for recovery

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@pezzy
Thanks so much for your experience and reaching out to me. I have heard of that a book so your recommendation validates that it's worth buying. It's so hard not seeing results and the feeling that my incontinence is not improving. It has also been difficult to find an actual pelvic floor specialist as opposed to a physical therapist who does not have the specific expertise to help me.
I wish I was dry at night and at least have better days than others. But standing and walking, especially around dinner time has been the most difficult. It's not like when I feel I need to go that I have the chance to hold it. I can do that standing over the toilet. The problem is that it comes with shorts bursts without a chance of stopping it. This has been the most frustrating part for me.

I feel like I'm doing everything I can with very little progress, so I hope the book can help.

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Profile picture for vcsurvivor59 @vcsurvivor59

@pezzy
Thanks so much for your experience and reaching out to me. I have heard of that a book so your recommendation validates that it's worth buying. It's so hard not seeing results and the feeling that my incontinence is not improving. It has also been difficult to find an actual pelvic floor specialist as opposed to a physical therapist who does not have the specific expertise to help me.
I wish I was dry at night and at least have better days than others. But standing and walking, especially around dinner time has been the most difficult. It's not like when I feel I need to go that I have the chance to hold it. I can do that standing over the toilet. The problem is that it comes with shorts bursts without a chance of stopping it. This has been the most frustrating part for me.

I feel like I'm doing everything I can with very little progress, so I hope the book can help.

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@vcsurvivor59

If kagles and other Pelvic floor exercises don’t work, the following usually do.

These are solutions for incontinence that work well if you have not had radiation. ProACT works quite well and stops incontinents almost completely. The other option is the sling. You can easily read up on both of these options.

If you had radiation that affects the urethra (most radiation other than spot radiation ) or may have it in the future these devices do not work well. Only the AUS works in those conditions

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Profile picture for jeff Marchi @jeffmarc

@vcsurvivor59

If kagles and other Pelvic floor exercises don’t work, the following usually do.

These are solutions for incontinence that work well if you have not had radiation. ProACT works quite well and stops incontinents almost completely. The other option is the sling. You can easily read up on both of these options.

If you had radiation that affects the urethra (most radiation other than spot radiation ) or may have it in the future these devices do not work well. Only the AUS works in those conditions

Jump to this post

@jeffmarc
Thanks so much for the information.

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I commented once before. Since that time, I just read an article that talked about the cause of nocturia. It stated that people are on their feet so much that the fluids are pulled down into our lower extremities due to gravity. And when we lay in bed the fluids move back up and cause us to pee throughout the night. (He also said that we need to stay hydrated and shouldn’t stop drinking early in the evening). The doctor suggested wearing compression socks during the day and taking them off when going to bed. I wore them from about 5pm until bed. The first night I only got up once to pee. I’m not sold on it yet but the first night was encouraging. I decided to buy some socks (3 pair for $17.95) with bamboo and am waiting for them to arrive. I’ll try anything to lower my nighttime “pee rate”. Good luck moving forward.

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