Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Profile picture for joelhoward1092 @joelhoward1092

@enmerzergmailcom It certainly sounds like you have seen the best doctors that there are. Have you found anything that provides you with any relief? Even if it is temporary.

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@joelhoward1092
The only thing that works is oxycodone 10 mg, and I don’t want to take it. So much nerve, muscle and now bone pain, switching, and blurry vision!
I hate complaining, that’s why I’ve stopped talking to people i’m attending at mindbody medicine, and I’m slurring my words. I hate oxycodone.! I can’t go back and look at what you said, how did we start this. Did you say you were also isolated and haven’t found a solution to your pain? please remind me. My mind is slipping, I think it’s the Med.

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Profile picture for cyndigarrison @cyndigarrison

Hi Kelsey! I'm cyndi garrison. I've had chronic pain most of my life due to spinal problems and orthopedic injuries. I got Psoriatic Arhritis in my 30s then got fibromyalgia in my early 40s and that stole my life away. I was a very successful Ob/Gyn and became so deblitated that I had to close my practice and get on disability. I've been on biologic drugs for 21 years as well as opioids and other drugs for pain relief. I never have a pain free moment. I've had over 50 surgeries, mostly orthopedic. Part of my cervical spine and the rest of my spine from the 4th thoracic vertebrae to the sacrum is fused. So are 2 of joints of my left ankle and several toes. The autoimmune process has affected my central nervous system which has resulted in severe peripheral sensory and motor neuropathies and I have small fiber neuropathy as well. And hypothyroidism and IBS/C. And all of that is just a challenge. I can deal with that. Im tough! But what gets me down is the severe chronic fatigue that keeps me in bed most of my days. I no longer have a social life but am very blessed by the Lord and have wonderful loving friends and family! So life is a challenge but its still good! Thank you for having me in the group.

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@cyndigarrison
Thinking of you. I want to tell you how much I relate to your story. I was an RN in Oncology and became ill with RA, Fibromyalgia...I had just turned 30. No diagnosis for many years. Now my rheumatologist wonders if I've had Psoriatic Arthritis instead of seronegative RA. I spent my 30's resting in bed. I also had surgery and radiation treatments for a cancer diagnosis in those years. Because of that severe disabling fatigue and pain I lost my career. To close a practice and get on disability is life changing loss. We keep on going though! It's not the life I thought it would be but I'm grateful for living and for love. I became a published poet and jewelry maker. Creativity has been my best medicine. Wishing you all the very best in life!

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Profile picture for joelhoward1092 @joelhoward1092

@msshonda Thank you. I have had those in the past with some success, even though it was brief. Pain management doctors seem to be stumped by the location of my pain (tailbone and surrounding area).

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HI pat , do you walk much during the day? I find walking swing my arms eased a lot of my pain thru out the body. The area the area you describe sounds like where sadistic neve comes out of the spine and it can cause a lot of pain. Something to ask your droctor about.

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Chronic pain since??? 78 now. Never managed well. I wish I could offer something to others. Distractions. Most of my treatments have only been attempts but no success. Just told autoimmune problems. In support groups itis helpful to know you sre believed and encouraged. I believr in your courage and strength. And abilities to face adversity. I will hope for more for us all! Together. Thanks for your support!

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Profile picture for cyndigarrison @cyndigarrison

Hi Kelsey! I'm cyndi garrison. I've had chronic pain most of my life due to spinal problems and orthopedic injuries. I got Psoriatic Arhritis in my 30s then got fibromyalgia in my early 40s and that stole my life away. I was a very successful Ob/Gyn and became so deblitated that I had to close my practice and get on disability. I've been on biologic drugs for 21 years as well as opioids and other drugs for pain relief. I never have a pain free moment. I've had over 50 surgeries, mostly orthopedic. Part of my cervical spine and the rest of my spine from the 4th thoracic vertebrae to the sacrum is fused. So are 2 of joints of my left ankle and several toes. The autoimmune process has affected my central nervous system which has resulted in severe peripheral sensory and motor neuropathies and I have small fiber neuropathy as well. And hypothyroidism and IBS/C. And all of that is just a challenge. I can deal with that. Im tough! But what gets me down is the severe chronic fatigue that keeps me in bed most of my days. I no longer have a social life but am very blessed by the Lord and have wonderful loving friends and family! So life is a challenge but its still good! Thank you for having me in the group.

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@cyndigarrison I love your mindset and it's one that seems to be commone on here. People have their lives turned upside down, few people believe it, and yet we are happy and making the most of the lives we have been given. Your faith in the Lord is inspiring. I would be nothing and nowhere without my faith. Instead, I've gotten well enough that I am working again and starting a business targeting women who are going through this without relying on God and without knowing this is a beautiful life anyway. Crazy that it's come to this, but I feel like it brought me to where /i'm supposed to be, doing what God wanted me to do all along. I still have fibromyalgia, arthritist in my hands and wrists, and am prone to post viral syndrom (long covid is a form of this) and I have to be very careful with my energy levels, but my life is wonderful and I'm truly grateful for it!

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Profile picture for pedrov57 @pedrov57

Hello
I just joined this online support group. I am already feeling better knowing I am not alone with my chronic condition. This involves lower back surgeries and ongoing treatments. I often feel like no one understands what it is like to deal with daily pain and limited mobility. The fatigue makes even simple tasks at work and at home difficult. Some days, getting out of bed, walking, or sitting for long stretches feels overwhelming. Keeping up with household chores is tough, too. Still, I am well enough right now to take part in this group's activities. I want to end this message by wishing you all a good day of recovery and painless mobility.

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@pedrov57 I'm sorry for your suffering but touched by your desire to focus on what you can do and in wishing us all good thoughts! Focusing on the positive with a clear perspective (clear, in brain fog?!) is so helpful! Everything can go wrong and we can still find gratitude in the circumstance. It takes the sting out of our problems and gives us energy. Choosing cheerfulness is a powerful way to boost energy in our lowest times. Reflecting on the good in our past, saying "What else could go right?" and meaning it, and finding good will for others, deserved or undeserved, gives us power and energy and got me out of my lowest physical points when weakness meant I couldn't see my teen daughter after school because if she complained about her day it sucked the energy I had left and I couldn't even make a sound. I was so weak I could hardly breath. Post Viral Syndrome (long Covid) hadn't been discovered, and I lay there for months on end. After 18 months I could leave the house. I could get back in shape. I started to live again. And I'm so grateful I learned to harness gratitude!

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Back in the late sixties a young teenager, Joni Earickson, dove into a lake and hit her head on the bottom. It left her essentially paralyzed from the chest down. As a young Christian, she cried out to her Lord, " God, I believe in miracles. Please heal me and let me walk again". No, she was not healed, but, as she has said, being paralyzed has allowed her to start several ministries such as Joni and Friends. She has learned to paint by holding a brush in her teeth and has produced many outstanding landscapes. She has married. Her life has touched may souls. Her lovely voice has recorded several Christian albums. It just shows what can be done if you focus on the positive. Have a blessed and positive day, fellow commenters!

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Hello All,
I am Molly, living in so sunny Phoenix, AZ and am challenged with chronic TMD/TMJ. For the last 5 years, my myofacial aches have increased and I can't smile now, my jowls pull my face down along with eyes at times. Working with local TMJ specialist here in Phoenix. Any suggestions are welcomed. Thank you.

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I have been having chronic lumbar pain for years. I recently had the lumbar epidural just yesterday! I hope that its going to help!! I do physical therapy twice, but everything aggravates the condition. It seems like the care for an 85 year old is not a priority for the medical community!
It's very depressing!!

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Glad to be here. Looking forward to reading info here as i can relate to living with pain. So far *5yrs, all types of tests & nothing found to explain it & voila: Hello everyone here.

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