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T cell large granulocytic leukemia
Blood Cancers & Disorders | Last Active: Jan 10 8:22am | Replies (33)Comment receiving replies
@jumper123 I am going to an oncologist that is not a specialist in LGLL, and I will change to a different clinic that has a specialist and networks with the mayo clinic. The oncologist I have knows nothing about my condition, however I have been in contact with Dr. Loughran director of cancer research at UV, and am on his registry.
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@jumper123 I've been diagnosed with T cell LGL. Seen two doctors, including a specialist in this issue at Memorials Sloan Kettering in NYC.
I also contacted Dr Loughran's office to inquire about an appt with him. They wanted a fee just to submit my data to him, and thereafter they would decide whether to reach out to me.
That is why I went to MSK. Can you tell me what you mean by being on Dr Loughran's registry please. I have a very good friend who say Dr Loughran around 2016 with our same issue when Loughran was at Hershey, PA. PS My friend is my age 83 and is doing well. Good news to us, I hope.