Does anyone have multiple diagnosed illnesses besides P/D? I have 5+
Besides a diagnosis of Parkinson's Disease, I have Peripheral Neuropathy, Irregular heart beat (Bigeminy), Epilepsy, mild Cognitive Decline, Raynaud's Syndrome, vision problems, GI problems, and a host of other disorders/problems all of which may be non-motor P/D symptoms/problems/disorders (which would fill up the whole page!)
Please let me know if and what you have besides P/D! I'm on multiple Mayo groups and many topics sound oh,so Parkinson's to me.
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I have Parkinson's Disease, Ischemic Heart Disease, Hypothyroidism, severe sleep apnea, blood clots in legs and lungs, glaucoma, severe hearing loss. The symptoms from all of these conditions are hard to separate from each other. Which disease is causing each symptom is very difficult to know.
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3 ReactionsPost-polio syndrome, Parkinson's, prostate cancer - all of which have fatigue as a side effect from the disease or treatment. I'm often surprised that I'm awake!
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4 ReactionsI am 2 years older than dirt (80) and I have more comorbidities that you can shake a stick at; most of them are just the things you get when you don't die young and I take lots of meds for them: HIGH blood Pressure; LOW thyroid; HIGH Choloesterol; GERD; Planus Lichen (an auto-immune disorder where your immune system has a strong case of paranoia and has gotten to believe that the mucus membranes in your mouth are a clear and present danger not only to me but to everybody on the planet and as well,) endangering my abilty to engage in my 2 most favorite activities - eating and talking . I may as well also reveal the shame of a fungal infection on my big toe on my left foot, which I'be been unable to shake for 3 years; none of the other toes have demonstrated the least interest in hosting the fungall infection (at least not so far. So I'm hoping that I can make it through this valley of the shadow of very mild cases of mild maladies before they enter a stage where they become interested in joining the big toe in its adventures. . I also have entertained a number of Mini Strokes so take a baby aspirin ever day. I am rewarded in my diligence in taking my baby aspirin by having a series of bruises that seem to take up permanent residence in the places where my cannula for my l-dopa pump gives me a steady stream of l-dopa every day.. The double vision that I had as a child but grew out of has returned to the homestead and entertains me with almost more information than I could process before I had PD. I also have osteopoenia for which I took meds for 6 years, until they realized that the med was actually making it worse. And I have hearing aides. All of my maladies are at the low end and are fuly controlled with the lowest doses of each med. except for my PD which is Advanced stage, and demands copious doses of pills in addition to the l dopa delivered by my pump .And all these other non-PD maladies are age-appropriate and controlled very, very well by the lower doses of drugs. And lest I forget, I also entertain the maladay that all PD patients are erquird to have - chronic constipation, which I can control only by daking approsimately 1 pound of fiber every day and consuming lots and lots of prunes or kiwi fruit. I think this is the full list of al my complaints and I hope not to entertain any more
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6 ReactionsPD, oral dysphagia, bronchiectasis, MAC lung disease, and immune deficiency.
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2 ReactionsI am 54. I have Lupus, Fibromyalgia and Graves Disease. I have had multiple strokes and even one bout of complete temporary blindness from multiple strokes. I am caring for my husband who has PD and has had 26 major surgeries over the past 3 years. It is what it is, but I refuse to let it get me down.
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9 Reactions72 yo, female, diabetes, low thyroid, Meunieres, continuous low grade UTI, severe back pain from osteoarthritis, recent PD diagnosis, bursitis. Between pain from back and bursitis, loss of balance, tremors, dizziness and fatigue I am amazed, I function at all most days.
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7 ReactionsWell, so far, @jatonlouise, I just learned that I probably have Planus Lichen (which AI says is Lichen Planus) because I have all the symptoms thereof (gee, thanks, jl) and my Thyroid has gone high and low, now being ignored, yes, your toenail fungus will spread (mine did), but I don't take meds for my osteopenia. But surely you must have Peripheral Neuropathy, Raynaud's, ummmm well I have some stuff I ignore because no one cares to do anything about it... Rosaecia, Bigeminy, had Tachycardia, but I had an ablation. Doesn't any of that sound familiar?Isn't all this just a barrel of fun???By the way, what kind of Specialist handles the Lichen? I might as well find out, so I can tackle this new one..
Carry on,jatonlouise!Bettyin sickness, wishing in health
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2 Reactions@barryl Oh! Thanks for the reminder. I forgot to add that to my ever-expanding disease list!
Yes, I too have sleep apnea.
(didn't really want a reminder!)
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1 Reaction@jatonlouise , frats. I forgot all about the sleep apnea, the sleep deprivation, the insomnia attacks, the Ear Worm (look that one up. Too lazy to repeat), the hallucinations..but these all seem to come up in non-motor PD desciptions as Symptoms.
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1 Reaction@bruizersmom - It's hard for me to forget about Sleep Apnea, but.... I learned a trick from my dentist to almost get my obstructive events to ZERO every night. It's called "sleep noodle".
They are available on Amazon. You wear it on your back so you can stay on your side. If you try to roll on your back it prevents that. It works for me!! Good luck. Barry
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