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Liver Fluke Fasciola Hepatica and the lives it wrecks
I have come to learn that if you have a parasite infection that you unknowingly give people free rein to discriminate and dehumanize. It started in fall 2020, like I'd had my chest filet open. The most god awful pain ever, lump in throat that continued to swell to where I couldn't swallow solids, spine would swell, neck and into ears and jaw so swollen like it was wired shut, my ear canal eventually swelled shut and the taste of amphibian came to mind as I developed a unusually disgusting constant slime feeling in mouth. Then the lump in throat seemingly ruptured one day in March 2021 as if I was stabbed from inside out, knocked the wind out of me.then proceeded to salivate for several days so much so I had to walk around with a cup and it continued to get thicker and then gritty and I noticed I was spitting up these little white things that looked like sesame seeds and they were moving so went to local ER and they diagnosed me as delusional right out the gate. I went to the emergency room and urgent Care combined a total of 14 times in a two week period as I knew that something much more sinister was coming down the pipeline from my symptoms I was having far worse than the one I already had and I proceeded to choke up things that look like that's what I said I even told them that it looks like flukes nobody would listen to me nobody would do anything and in fact I treated myself with albendazole and praziquantel and all it did was slow it down. Oh did I forget to mention that it's subcutaneous as well yeah it's not just in my gastrointestinal tract and I'm sure you guys will learn to who I am if it kills me because it's imagining it's in my central nervous system because one came out of my eye on January 3rd and it's only a matter of time literally I can feel quicker in my brain sometimes and like my whole head almost stutters on my head thinking problems timing scheduling I can't do anymore I've lost my job because I can't work it's all I can do to get through the day every 12 weeks it goes through a peak. And what I mean by that is goes crazy under my skin and the ones under my skin and in my eye and for my bell I'll look completely different cuz they're all in different stages of morphology and I don't think I'm a doctor but education is education and I've been forced to educate myself on this and I've been doing nothing but trying to save my own ass since March 21 and it's my story and if I don't tell it nobody else will and this disease right here I should not have to be beating down doors to get a blood test that should I have been to me in a country where we were made to think that we don't have this issue here but let me tell you I've done my homework and it's a known thing and we'll see the vets are well aware of the liver flick issue and virtually no farm is free of liver fluke in California and it is waterborne that's a fact and it was also a fact is that the doctors are so poorly educated on parasite infections that they would rather dismiss you and send you home sick as hell even though I've had plenty of signs that point to supporting what I'm saying I have but they don't care it's seriously like I'm living in la la land I mean I don't know how to explain it it's like the Twilight zone it's almost like it's being done on purpose because all they're doing is setting me up to die I'm going to die and if the last thing I can do before I die or in my desk is get the law changed so that people don't have to go to the CDC to get this blood test or the medication then that's what needs to happen because I shouldn't have to be fighting with what little energy I have in my body to just get simple freaking help the CDC said it's diagnosed by either eggs in your stool or by seeing adult flukes well here's my adult flukes take a look
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I'm new to this form but it seems like I'm signed in properly. So if there's a way to private message me please do. I've been struggling with these since late fall a year ago and I haven't really made much progress except they are getting bigger. How did you convince anyone in the medical field to help you?
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2 ReactionsAs soon as I read the first post and then the rest with all the photos and I started to cry as I sit here going through the same things for so many years. I feel like I’m dying. And I keep trying to do all the right things. I had an episode so bad I wa sure I would die that night. It’s a long story scary as hell. I met one other person via posts over at curezone. This man was experiencing the same thing that happened to me and he too almost died. I’m dealing with other chronic illnesses but this is the thing that seems to be beating me. I’ve fought for years. I’m so sad to see you all going through the same thing, yet I feel a little less alone. I’m an older woman and my family acts like I’m crazy. And I’m not. I’m just very ill and need help. Thank you for sharing your stories. I’ll share photos in my next post here. So happy to find your posts. Hang in there and keep fighting. We can’t give up. 💗😢
I am absolutely blown away. You are telling my story. Mine started in March of 2020. Here I am six years later a beautiful life in ruins. I am broken , extremely sick, watched my boyfriend of 17 years die from cancer from this horrific disease. There is nothing worse than watching someone you love die but knowing your fate is going down the same path. I could write a book on the most unbelievable things that have happened in the last 5 years. You wouldn't believe it. I question everyone and everything. I never thought my life would be one this. The fact that my word means nothing. What I see what I am living, what I am showing doctors is not even acknowledged. I have told the truth. I will stand by anything I have said . My story no matter the humiliation, pain, or loss I have never changed it. It is killing me. Two months ago after complaining of not being able to catch my breath ( I have never smoked) I asked for an MRI the doctor said no a cat without contrast. Whatever anything. It came back with 3vnodules on my lungs granules and granule scarring. My doctor instead of sending me to pulmonary he took it upon himself to call and was told . It was nothing this happens in the Midwest all the time. Seeing my boyfriend died of lung cancer and had nodules and granules in his lungs here I am not a year later with same symptoms and that is the response I received and believe it or not this is nothing compared to previous encounters. I was absolutely sickened. I have actually just stepped away from the medical field right now . Reevaluating what to do next. One thing has been to get my affairs on line. I don't see anything changing.i have almost just given up. I don't know exactly which fluke I have. I have had cyst in my brain, face. My BF had them in neck and spine misdiagnosed with TB and phenmonia. It's not like you can't see it or it's not way out there not right. It is a crime . I fully believe it. I am tired of being sick. I want my voice to be heard. I am ready for something to change with this. There is no reason that this should be going on none. I want to make a change . I am not scared to put it out there. They have striped me of my pride. Something has to change. Any ideas anyway to get heard ? Crying hasn't got me anywhere.
Did you ever get help?
@blue70 I have tried everything here in my city. Seen numerous doctors. Didn't pass an O&P test or get a positive , immediately labeled delusional . It has stuck with me . Never been able to see even an infectious disease. It has blown my mind completely. Never been given any other test. Every hospital visit has at least 5+14 flags on the CBC DIFF or Urinalysis. You wouldn't believe some of the stories. I mean it. It would blow your mind. You know crazy would have been a lot easier to deal with. I will go in with pics or a specimen . The doctor will freak out claim they are going to help. Come back next visit and act like nothing is wrong . Look if it isn't what I am saying then just tell me what it is. I have gotten nothing. I have begged to speak with someone for just 10 minutes who is educated with some knowledge of flukes or even parasites. It's like they are purposefully going up against me. I am angry on thebery end of my rope. This is not living . I have lost everything. What is so hard with just checking send me to a specialist. I will give everything I own for treatment. For testing. Anything. It's pain 24-7 . It's beyond gross. It has destroyed my life. I am begging for any kind of help. I have been getting these nodules on my legs face and my back especially. It's pretty bad. I just want it to stop . I don't understand what happened to my voice. My rights. When and how did this all happen. .? It is hell
@blue70 I am checking into something like this myself. It was suggested that I should try looking into someone who treats their farm animal for parasites for ideas.
@viscerallyreal
I just found this support group. I hope you are doing okay. I think both my son and myself have blood fluke. But like most of you, no test run has detected anything. I have find an I.D. doctor that was willing to start me on praziquantel & ivermectin, because my symptoms were so bad. I thought I was going to die! But like the rest of you I feel like it has only slowed the progression. Have you gotten any relief from any think?
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