Retinal Vein Occlusion
I've just been diagnosed with Retinal Vein Occlusion by the Ophthomologist who treats my glaucoma. I see the Retinal Specialist in four days and have been put on Prednisone every two hours to reduce the inflammation. I don't really know what I will be dealing with - central or branch - nor the extent of the damage. My symptom was sudden blurriness over a period of about 3 weeks. In December, 2018 I had tube shunt surgery in my affected (left) eye which was successful in reducing the pressure; however, it left me with diplopia. Corrective (prism) lenses were helping until this blurriness occurred. This post is premature because I don't know exactly what I'm dealing with. However, my anxiety level is moderately high, and I would appreciate any comments from people who have dealt with this and gone through the process. Thank you!
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@berryy, My right eye is also affected by BRVO. I was treated with injections. In a BRVO (Branch Retinal Vein Occlusion) the blood leaks from the vein and can cause damage to the retina. In my case, I have an area where my retinal nerve was damaged and I have some partial vision in my right eye. When I look at a distance, I see a cloudy area; when I look at close range, I see a geyish blind spot. For me it is annoying, but my left eye is compensating. This will not go away for me because the nerve is damaged in that area.
You might find this interesting: When I look at the Amsler chart with my right eye, I see a fuzzy donut shaped srea that is the blind spot. I can see clearly inside of the hole, and outside of it!
How are you dealing with the injections? Any discomfort afterwards?
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1 ReactionI developed blurry vision in my right eye. I went to the optometrist today and he said I probably had branch vein retinal occlusion. I haven’t noticed my blood pressure being high but it was high when they took it in office. I am scheduled for an exam with the specialist on Monday and I am just super freaked out. I’m worried if it’s my blood pressure that it will get dangerously high before I can get to the dr to get it handled. It’s just a lot of scary info. Thanks for any encouragement.
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1 Reaction@quirkyfeather11
I certainly can understand your concern and fear as you wait for your appointment tomorrow. My own experience with blood pressure in a doctor's office is that it is usually higher than my normal readings. However, I really don't recall ever having my blood pressure taken by either my opthamologist or by my Retina Specialist. So I hope that will give you some relief from your worry.
You are fortunate that yor doctor has recognized the possibility of an occlusion, and has been able to get an appointment with the specialist right away. You can expect eye drops and scans that will show the doctor the inside of your eye. These are panless, and the only difficult part that I remember is trying not to blink whes requested. You will be amazed at the amount of information that the specialist will be able yo share with you, so be sure to take a list of your questions! WebMD has some good information about Retinal Occlusion.
https://www.webmd.com/eye-health/retinal-vein-occlusion
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I have a Branch Retinal Occlusion (BRVO) that has stabilized after my treatments. If you do have a BRVO, I will welcome any questions that you might have.
Do you have someone to go with you as a driver in case you have treatment tomorrow that might affect your vision and make driving difficult?
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1 Reaction@quirkyfeather11
I've been wondering about you. How did your appointment go? Did you get a diagnosis and or a treatment plan for the blurry vision?
@rosemarya I was diagnosed with branch vein retinal occlusion. We believe my high blood pressure is to blame, so I’ve started taking losartan for my blood pressure and next week I will begin injections for my vision. My eye doctor believes that he will be able to restore vision in that eye after a session or two, so here’s hoping;) thank you for checking on me.
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1 Reaction@quirkyfeather11
I'm happy for you that you have a diagnosis...and a treatment plan! When I started the injections, I remember how excited my retina doctor was that there is now medication to save patient's vision!
I'm here if you have any questions about the injections.
I was diagnosed with BRVO 8 years ago. I have normal blood pressure, so they’re not sure why this happened. My eyesight in that eye is blurry, but my “good eye” compensates. I have injections every 7 weeks. The goal is to limit further damage.
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1 Reaction@rosemarya I was recently diagnosed with brvo and have almost the same visual issue in my right eye. I’ve had 1 injection. Did your vision ever improve ? I can deal with this, my left eye compensates but I’m wondering if I need to continue with the injections.
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1 Reaction@quirkyfeather11
The injections were to prevent further damage to my vision. With BRVO, there is a leakage of blood from a vein in the back of the eye that causes damage to the optic nerve. The injection helps to "mop up the leak and reduce the inflammation to prevent further damage" according how my retina doctor explained it. If diagnosed and treated early, a person's vision can be saved from further damage. The injections are a major medical advancement, because they can prevent total loss of vision for an individual with the diagnosis.
@cm4713 has shared an excellent description of her treatment which is what I've experienced. The blurriness is where the optic nerve has been damaged and can appear differently for different individuals. My blurry area is in my righteye. It is like a donut shape with a clear hole is the middle. My left eye compensates and I can drive, sew, read music, etc
quirkyfeather11, Yes, you will need to continue the injection treatment. I had injections according to a schedule that my retina doctor determined based on what he saw inside my eyes. Sometimes the injections were monthly, and sometimes 6 weeks apart. I took the injections (right eye only) over a 4 to 5 years. And over time they were spaced further apart. I am currently under observation/monitoring by my ophthalmologist who will refer me to retina doc if needed.
My experience is that the injections are a nuisance - but a worth while nuisance to keep my vision! It helped me if I took a Tylenol after the injection, and took a nap on my back with a cool damp washcloth over my eyes, How did the first injection go for you? When will you have a follow-up with your doctor?
Greetings. Has anyone heard of ANNEXIN A5 for RETINAL VEIN OCCLUSION? Supposedly in phase 2 clinical trials. That's what I've heard anyway, no promises about anything on my part. And thank you for allowing me to be part of this.