Would you mind telling us a bit more about your question? We have a lot of members who have discussed having hip issues or replacements, but I have not come across the question regarding lack of a hip joint. Is this from an injury, surgery, or other medical issue?
Hello.Im writing you because I'm in shock i have exactly the same problem. I'm currently on oral antibiotics after being on IV antibiotics. Im just wondering if you ever got a hip put in?
Would you mind telling us a bit more about your question? We have a lot of members who have discussed having hip issues or replacements, but I have not come across the question regarding lack of a hip joint. Is this from an injury, surgery, or other medical issue?
I'm confident that @lynzze@froggy1@dzoneill and others in this incredible group will return to share their experiences; in the meantime could you share a bit more about yourself? Did injury, surgery, or some other medical issue cause this? We look forward to getting to know you.
Would you mind telling us a bit more about your question? We have a lot of members who have discussed having hip issues or replacements, but I have not come across the question regarding lack of a hip joint. Is this from an injury, surgery, or other medical issue?
I'm not sure if this message is for me. I have not had a hip for almost 13 months now. I've been too scared to try another surgery. But I have had a recent "come to Jesus moment" when I realized that I cannot live the rest of my life without a hip. My old back and neck problems have resurfaced and if I don't do something soon I'll be on my back for the rest of my life. Not fun. So I went to see the surgeon who removed the final hip (he is not the surgeon who did the first 3 surgeries!). I really like and trust this man with my life and it just so happens that he did his residency at the Mayo Clinic. He's in Seattle now and I am starting the pre op testing ( blood tests and removing fluid from the side with no joint).These tests will determine what to do next ( if he finds staph in the fluid I'll have to start oral antibiotics right away) and he'll be deciding if he needs to do a 2 stage or if he can just go for it all at the same time. I'm extremely frightened and will be praying that everything goes perfect. The surgeon's name is Dr. Adam Sassoon and I like and trust him because he looks me right in the eye when he talks to me, which, to me means he's listening to me. And he's a man of his word. If he says he's going to come see you everyday in the hospital, he will do just that and I know this from experience. I'll keep this forum updated on my progress towards surgery #5, in case anyone cares.....
Would you mind telling us a bit more about your question? We have a lot of members who have discussed having hip issues or replacements, but I have not come across the question regarding lack of a hip joint. Is this from an injury, surgery, or other medical issue?
@dzoneill I am sorry to hear of your situation and I can totally relate to your situation however mine came in a different form. In 2005 I was in a head on collision with a semi which caused my left hip to dislocate (along with numerous other traumatic injuries) they were able to put my hip back into place without surgery however a couple weeks later when doing physical therapy it became dislocated again. So the decision was made to put hardware in to try and stabilize it from dislocation, which worked until my femoral head became necrotic a year later . At that point they decided to do the first THR ...it was great ...but it only lasted two weeks and then I got Staph infection and it had to be removed. So then they put in a concrete hip spacer.. Needless to say we went back and forth like this 4 times over the course of 7 years ...everytime they put in a new hip I would eventually get MRSA/staph and they would remove it. Finally when hip replacement 4 became infected I was referred to Mayo Clinic .
Their recommendation was to take everything out and leave it out for at least a year. If I could go at least one year without infection they would try one last hip relplacement .
It was a long recovery process plus learning how to walk with a hanging hip but i actually stunned doctors a year later when i was walking without any assistive devices (i probably shouldve been using my cane at least lol) of course I had a major limp since my left leg was so much shorter but i made it work not only for one year but for 4 years!
Finally last year I went back and told them it was time, my lower back had been killing me so bad from my uneven gait.
June 6th I recieved my "Hail Mary" 5th total hip lol and I am so happy to say that so far (fingers crossed) i havent had any problems with infection. Im only 34 years old so I know its a life long battle but at this point in time thing are looking up!!
@sarahdonegan95 Sorry to hear of you losing your hip ..... infections are a bad deal. Do they know what caused the infection?? to answer your question it took me 6 months to a year to walk on it. Eventually the muscle built up around my femur and acted as a cushion between the top of my femur and my pelvis allowing me to walk. But it does take time and not everyone can walk on it.
I hope you are one day able to get a new hip just watch for signs of infection. It happened to me 5 plus times. Unfortunately for me it led to me having my leg amputated in February and a 4+ month stay in the hospital (where I still am currently) but my case is rare.
I wish you the best of luck!!
@dzoneill I am sorry to hear of your situation and I can totally relate to your situation however mine came in a different form. In 2005 I was in a head on collision with a semi which caused my left hip to dislocate (along with numerous other traumatic injuries) they were able to put my hip back into place without surgery however a couple weeks later when doing physical therapy it became dislocated again. So the decision was made to put hardware in to try and stabilize it from dislocation, which worked until my femoral head became necrotic a year later . At that point they decided to do the first THR ...it was great ...but it only lasted two weeks and then I got Staph infection and it had to be removed. So then they put in a concrete hip spacer.. Needless to say we went back and forth like this 4 times over the course of 7 years ...everytime they put in a new hip I would eventually get MRSA/staph and they would remove it. Finally when hip replacement 4 became infected I was referred to Mayo Clinic .
Their recommendation was to take everything out and leave it out for at least a year. If I could go at least one year without infection they would try one last hip relplacement .
It was a long recovery process plus learning how to walk with a hanging hip but i actually stunned doctors a year later when i was walking without any assistive devices (i probably shouldve been using my cane at least lol) of course I had a major limp since my left leg was so much shorter but i made it work not only for one year but for 4 years!
Finally last year I went back and told them it was time, my lower back had been killing me so bad from my uneven gait.
June 6th I recieved my "Hail Mary" 5th total hip lol and I am so happy to say that so far (fingers crossed) i havent had any problems with infection. Im only 34 years old so I know its a life long battle but at this point in time thing are looking up!!
Need any advice you all might have. My very athletic, physical, strong 40-year old son had hip replacement 2-6-2018. Infected right away, and have been fighting staph ever since. After 2 months of many debreedings, wound vac changes, antibiotic IVs, infectious disease consults, home health care, etc, doc said hip had to come out, planned to put in antibiotic cement spacer. However on Monday, he came out of surgery and told us that the top of the femur was splintered and that he was unable to put in the spacer. Now he says my son will have to live without hip, that the open space will fill in with fibers and he MAY eventually be able to walk with cane, but that he will never have a pain free life. Pain if the only reason he had the hip replacement in the first place. Talking to our family physician, and his brother who is an orthopedic surgeon, and to our local college that has a BIOJOINT department. Surgeon has told me 3 times that this will qualify son for disability, as if that will make everything alright. It is inconceivable to me that we don't have other options.
I am not sure whether or not your son lives within a reasonable distance of any Mayo Clinic locations but I would strongly urge him to seek a second opinion at the Mayo Clinic. I remember reading an article about Mayo Clinic finding that 80 percent of initial diagoneses are not correct.
Best of luck to your son.
Need any advice you all might have. My very athletic, physical, strong 40-year old son had hip replacement 2-6-2018. Infected right away, and have been fighting staph ever since. After 2 months of many debreedings, wound vac changes, antibiotic IVs, infectious disease consults, home health care, etc, doc said hip had to come out, planned to put in antibiotic cement spacer. However on Monday, he came out of surgery and told us that the top of the femur was splintered and that he was unable to put in the spacer. Now he says my son will have to live without hip, that the open space will fill in with fibers and he MAY eventually be able to walk with cane, but that he will never have a pain free life. Pain if the only reason he had the hip replacement in the first place. Talking to our family physician, and his brother who is an orthopedic surgeon, and to our local college that has a BIOJOINT department. Surgeon has told me 3 times that this will qualify son for disability, as if that will make everything alright. It is inconceivable to me that we don't have other options.
I've been living without a hip joint for 14 months now. I use a cane in the house and a 4 wheeled walker outside but always have to use an electric cart when going to the grocery store. My story is on here somewhere. 4 surgeries, 2 dislocations, 2 staph infections. A few weeks ago I was actually considering going for a 5th surgery. Not anymore. Too risky for me. I wouldn't want to live through another staph infection and my chances of getting another one are high since I've had 2. What state do you live in? There are surgeons who specialize in hard cases. But he needs to realize that since he already has a staph infection, his chances of getting another one are higher than normal. Does he want to risk that again? The surgeon who removed my last hip is fantastic. He fixes what other Dr's screw up. It shouldn't be that hard to find someone to operate again. That's what surgeons do, they cut. But if you read all the horror stories on here about people having surgery after surgery and infection after infection you have to ask yourself "when is it enough?" One lady on here just had her whole leg amputated at the hip due to infections.Make sure he does his homework and read and research what he's looking at before he does it again. I'm 53 years old and crippled for life. If I had to do it all again I wouldn't do it. And I thought I was in the worst pain ever. Not even close to now, not even close.....
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Hello.Im writing you because I'm in shock i have exactly the same problem. I'm currently on oral antibiotics after being on IV antibiotics. Im just wondering if you ever got a hip put in?
Welcome to Connect, @hipless.
I'm confident that @lynzze @froggy1 @dzoneill and others in this incredible group will return to share their experiences; in the meantime could you share a bit more about yourself? Did injury, surgery, or some other medical issue cause this? We look forward to getting to know you.
I'm not sure if this message is for me. I have not had a hip for almost 13 months now. I've been too scared to try another surgery. But I have had a recent "come to Jesus moment" when I realized that I cannot live the rest of my life without a hip. My old back and neck problems have resurfaced and if I don't do something soon I'll be on my back for the rest of my life. Not fun. So I went to see the surgeon who removed the final hip (he is not the surgeon who did the first 3 surgeries!). I really like and trust this man with my life and it just so happens that he did his residency at the Mayo Clinic. He's in Seattle now and I am starting the pre op testing ( blood tests and removing fluid from the side with no joint).These tests will determine what to do next ( if he finds staph in the fluid I'll have to start oral antibiotics right away) and he'll be deciding if he needs to do a 2 stage or if he can just go for it all at the same time. I'm extremely frightened and will be praying that everything goes perfect. The surgeon's name is Dr. Adam Sassoon and I like and trust him because he looks me right in the eye when he talks to me, which, to me means he's listening to me. And he's a man of his word. If he says he's going to come see you everyday in the hospital, he will do just that and I know this from experience. I'll keep this forum updated on my progress towards surgery #5, in case anyone cares.....
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5 ReactionsThanks for responding to my tag, @froggy1. I'm certain @hipless will appreciate your insights, too.
@sarahdonegan95 Sorry to hear of you losing your hip ..... infections are a bad deal. Do they know what caused the infection?? to answer your question it took me 6 months to a year to walk on it. Eventually the muscle built up around my femur and acted as a cushion between the top of my femur and my pelvis allowing me to walk. But it does take time and not everyone can walk on it.
I hope you are one day able to get a new hip just watch for signs of infection. It happened to me 5 plus times. Unfortunately for me it led to me having my leg amputated in February and a 4+ month stay in the hospital (where I still am currently) but my case is rare.
I wish you the best of luck!!
@hipnohip I will be praying it all works out for him! Infection is a horrible thing. The longer he can go without it and without infection the better.
It's been 2 years now...i use crutches. My Dr. has done this surgery a few times. It took his first 10 years to walk without crutches or a cane.
Need any advice you all might have. My very athletic, physical, strong 40-year old son had hip replacement 2-6-2018. Infected right away, and have been fighting staph ever since. After 2 months of many debreedings, wound vac changes, antibiotic IVs, infectious disease consults, home health care, etc, doc said hip had to come out, planned to put in antibiotic cement spacer. However on Monday, he came out of surgery and told us that the top of the femur was splintered and that he was unable to put in the spacer. Now he says my son will have to live without hip, that the open space will fill in with fibers and he MAY eventually be able to walk with cane, but that he will never have a pain free life. Pain if the only reason he had the hip replacement in the first place. Talking to our family physician, and his brother who is an orthopedic surgeon, and to our local college that has a BIOJOINT department. Surgeon has told me 3 times that this will qualify son for disability, as if that will make everything alright. It is inconceivable to me that we don't have other options.
I am not sure whether or not your son lives within a reasonable distance of any Mayo Clinic locations but I would strongly urge him to seek a second opinion at the Mayo Clinic. I remember reading an article about Mayo Clinic finding that 80 percent of initial diagoneses are not correct.
Best of luck to your son.
Helen
I've been living without a hip joint for 14 months now. I use a cane in the house and a 4 wheeled walker outside but always have to use an electric cart when going to the grocery store. My story is on here somewhere. 4 surgeries, 2 dislocations, 2 staph infections. A few weeks ago I was actually considering going for a 5th surgery. Not anymore. Too risky for me. I wouldn't want to live through another staph infection and my chances of getting another one are high since I've had 2. What state do you live in? There are surgeons who specialize in hard cases. But he needs to realize that since he already has a staph infection, his chances of getting another one are higher than normal. Does he want to risk that again? The surgeon who removed my last hip is fantastic. He fixes what other Dr's screw up. It shouldn't be that hard to find someone to operate again. That's what surgeons do, they cut. But if you read all the horror stories on here about people having surgery after surgery and infection after infection you have to ask yourself "when is it enough?" One lady on here just had her whole leg amputated at the hip due to infections.Make sure he does his homework and read and research what he's looking at before he does it again. I'm 53 years old and crippled for life. If I had to do it all again I wouldn't do it. And I thought I was in the worst pain ever. Not even close to now, not even close.....