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Is anyone currently walking without a hip joint?
Hello @dzoneill, and welcome to Connect.
Would you mind telling us a bit more about your question? We have a lot of members who have discussed having hip issues or replacements, but I have not come across the question regarding lack of a hip joint. Is this from an injury, surgery, or other medical issue?
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My left hip bone is imbused next to the adjoining bone – shown in the MRI plus X-ray.I m on chiropractic treatment n can walk with less pain
@dzoneill you can read more about @froggy1‘s story here: https://connect.mayoclinic.org/discussion/if-youre-living-without-a-hip-like-me-please-reach-out-to-me/
@dzoneill I am sorry to hear of your situation and I can totally relate to your situation however mine came in a different form. In 2005 I was in a head on collision with a semi which caused my left hip to dislocate (along with numerous other traumatic injuries) they were able to put my hip back into place without surgery however a couple weeks later when doing physical therapy it became dislocated again. So the decision was made to put hardware in to try and stabilize it from dislocation, which worked until my femoral head became necrotic a year later . At that point they decided to do the first THR …it was great …but it only lasted two weeks and then I got Staph infection and it had to be removed. So then they put in a concrete hip spacer.. Needless to say we went back and forth like this 4 times over the course of 7 years …everytime they put in a new hip I would eventually get MRSA/staph and they would remove it. Finally when hip replacement 4 became infected I was referred to Mayo Clinic .
Their recommendation was to take everything out and leave it out for at least a year. If I could go at least one year without infection they would try one last hip relplacement .
It was a long recovery process plus learning how to walk with a hanging hip but i actually stunned doctors a year later when i was walking without any assistive devices (i probably shouldve been using my cane at least lol) of course I had a major limp since my left leg was so much shorter but i made it work not only for one year but for 4 years!
Finally last year I went back and told them it was time, my lower back had been killing me so bad from my uneven gait.
June 6th I recieved my “Hail Mary” 5th total hip lol and I am so happy to say that so far (fingers crossed) i havent had any problems with infection. Im only 34 years old so I know its a life long battle but at this point in time thing are looking up!!
Gosh what an ordeal so glad u are getting better and admire u greatly for going 4yrs without hip ! My husband is currently going through something similiar on his 2nd spacer after his last hip was taken out due to staph infection which returned @fter getting all cleAr ! He also has diabetes #o thT complicates healing and on IV antibiotics for 10 weeks plus taking oral antibiotics also it’s been original hip replaced in 20045 awful hard but he is strong and resilient in July they hope to place another hip in all going well his
Hello I'm in shock right now i have the exact same problem.Im still on antibiotics i just went on oral antibiotics and I'm glad that picc line is gone . So basically I'm trying to see how your doing?.Also did you ever get your hip?
Hello.Im writing you because I'm in shock i have exactly the same problem. I'm currently on oral antibiotics after being on IV antibiotics. Im just wondering if you ever got a hip put in?
Welcome to Connect, @hipless.
I'm confident that @lynzze @froggy1 @dzoneill and others in this incredible group will return to share their experiences; in the meantime could you share a bit more about yourself? Did injury, surgery, or some other medical issue cause this? We look forward to getting to know you.
I'm not sure if this message is for me. I have not had a hip for almost 13 months now. I've been too scared to try another surgery. But I have had a recent "come to Jesus moment" when I realized that I cannot live the rest of my life without a hip. My old back and neck problems have resurfaced and if I don't do something soon I'll be on my back for the rest of my life. Not fun. So I went to see the surgeon who removed the final hip (he is not the surgeon who did the first 3 surgeries!). I really like and trust this man with my life and it just so happens that he did his residency at the Mayo Clinic. He's in Seattle now and I am starting the pre op testing ( blood tests and removing fluid from the side with no joint).These tests will determine what to do next ( if he finds staph in the fluid I'll have to start oral antibiotics right away) and he'll be deciding if he needs to do a 2 stage or if he can just go for it all at the same time. I'm extremely frightened and will be praying that everything goes perfect. The surgeon's name is Dr. Adam Sassoon and I like and trust him because he looks me right in the eye when he talks to me, which, to me means he's listening to me. And he's a man of his word. If he says he's going to come see you everyday in the hospital, he will do just that and I know this from experience. I'll keep this forum updated on my progress towards surgery #5, in case anyone cares…..
Thanks for responding to my tag, @froggy1. I'm certain @hipless will appreciate your insights, too.
@sarahdonegan95 Sorry to hear of you losing your hip ….. infections are a bad deal. Do they know what caused the infection?? to answer your question it took me 6 months to a year to walk on it. Eventually the muscle built up around my femur and acted as a cushion between the top of my femur and my pelvis allowing me to walk. But it does take time and not everyone can walk on it.
I hope you are one day able to get a new hip just watch for signs of infection. It happened to me 5 plus times. Unfortunately for me it led to me having my leg amputated in February and a 4+ month stay in the hospital (where I still am currently) but my case is rare.
I wish you the best of luck!!
@hipnohip I will be praying it all works out for him! Infection is a horrible thing. The longer he can go without it and without infection the better.
It's been 2 years now…i use crutches. My Dr. has done this surgery a few times. It took his first 10 years to walk without crutches or a cane.
Need any advice you all might have. My very athletic, physical, strong 40-year old son had hip replacement 2-6-2018. Infected right away, and have been fighting staph ever since. After 2 months of many debreedings, wound vac changes, antibiotic IVs, infectious disease consults, home health care, etc, doc said hip had to come out, planned to put in antibiotic cement spacer. However on Monday, he came out of surgery and told us that the top of the femur was splintered and that he was unable to put in the spacer. Now he says my son will have to live without hip, that the open space will fill in with fibers and he MAY eventually be able to walk with cane, but that he will never have a pain free life. Pain if the only reason he had the hip replacement in the first place. Talking to our family physician, and his brother who is an orthopedic surgeon, and to our local college that has a BIOJOINT department. Surgeon has told me 3 times that this will qualify son for disability, as if that will make everything alright. It is inconceivable to me that we don't have other options.
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