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Interstitial Cystitis: Anyone have symptom relief tips?

Posted by januaryjane @januaryjane, May 6, 2020

Ive been diagnosed with IC for awhile and am on Elmiron. It has been helping pretty well. The past few days Ive had a bad flare. I try not to take advil/ibuprofen. Any others out there with IC that have symptom relief tips? Im staying away from the 4 Cs, and other irritants in food, drink. (The 4 Cs being caffeine, carbonated, citrus, vit. C.)

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diane | @dks | 3 days ago
In reply to @bella921 "@dks I'm having a really hard time with bladder spasms now, and I'm taking d-mannose, too...." + (show)
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@dks I'm having a really hard time with bladder spasms now, and I'm taking d-mannose, too. People have to be sure it doesn't contain any additives. I take the powder you mix in water 2X day. That seems to work better for me than capsules. Something I haven't seen mentioned is Kegel exercises. Before I started doing them, I couldn't make it to the bathroom in time, and the urine flow would begin. Then, I had clean up to do. This happened well before I had any pain at all. I chalked it up to getting older. The Kegels didn't help with pain, but they did help with holding my urine till I was on the toilet. And they stopped the bladder spasms after emptying my bladder.

D-mannose can help us avoid a bladder infection that might go unnoticed during a flare, as well as giving some of us, at least, some relief from the flare, itself. Good luck to everyone. This thing steals our life.

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@bella921
I'm so sorry you are having bladder problems. I am glad the Kegel exercises have helped you with the urine holding problem and the bladder spasms after urination. Every little bit seems to help, and that's a good thing! I hope the Kegels will continue helping you. Take care!

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bella921 | @bella921 | 3 days ago
In reply to @dks "@bella921 I'm so sorry you are having bladder problems. I am glad the Kegel exercises have..." + (show)
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@bella921
I'm so sorry you are having bladder problems. I am glad the Kegel exercises have helped you with the urine holding problem and the bladder spasms after urination. Every little bit seems to help, and that's a good thing! I hope the Kegels will continue helping you. Take care!

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@dks Thank you, that is so kind of you. You take care, too. I hope for terrific outcomes for all of us.

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