I am also experiencing hair loss. My rheumatologist assured me this loss was triggered by the disease GCA and not by my use of prednisone. The disease is a shock to the system resulting in hair loss.
Dear mlz,
Thanks for the information regarding how long it might take Kevzara to be effective. I was expecting a more rapid onset of action so will try to be patient. I hope getting off the methotrexate leads to some hair regrowth!
Dear mlz,
Thanks for the information regarding how long it might take Kevzara to be effective. I was expecting a more rapid onset of action so will try to be patient. I hope getting off the methotrexate leads to some hair regrowth!
I am also experiencing hair loss. My rheumatologist assured me this loss was triggered by the disease GCA and not by my use of prednisone. The disease is a shock to the system resulting in hair loss.
I was diagnosed in May 2025 by GP and rheumatologist. Pain started in the prior fall. I have tapered down to 5mg of prednisone and had to go back up to 8mg due to pain in hip. I am tapering again. I have lost at least 2/3 of my hair. My ponytail used be larger than a silver dollar diameter. It is now about the size of the diameter of a nickel! It has changed to being very dry and wiry. I sure do hope it grows back when PMR is done with me and looks healthier. Also, my rheumatologist said that prednisone does not make your hair fall out. Since being in this support group - I do not agree with her.
I was diagnosed in May 2025 by GP and rheumatologist. Pain started in the prior fall. I have tapered down to 5mg of prednisone and had to go back up to 8mg due to pain in hip. I am tapering again. I have lost at least 2/3 of my hair. My ponytail used be larger than a silver dollar diameter. It is now about the size of the diameter of a nickel! It has changed to being very dry and wiry. I sure do hope it grows back when PMR is done with me and looks healthier. Also, my rheumatologist said that prednisone does not make your hair fall out. Since being in this support group - I do not agree with her.
I was diagnosed in May 2025 by GP and rheumatologist. Pain started in the prior fall. I have tapered down to 5mg of prednisone and had to go back up to 8mg due to pain in hip. I am tapering again. I have lost at least 2/3 of my hair. My ponytail used be larger than a silver dollar diameter. It is now about the size of the diameter of a nickel! It has changed to being very dry and wiry. I sure do hope it grows back when PMR is done with me and looks healthier. Also, my rheumatologist said that prednisone does not make your hair fall out. Since being in this support group - I do not agree with her.
@pbhorton I don’t agree with them at all. I had no issues with my hair until pred. I lost it to chemo some years back so I know how this feels. It’s due to the pred!!! People in this group say it will grow back. I’m down to 6 mg now. My fingers are crossed.
@pbhorton I don’t agree with them at all. I had no issues with my hair until pred. I lost it to chemo some years back so I know how this feels. It’s due to the pred!!! People in this group say it will grow back. I’m down to 6 mg now. My fingers are crossed.
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I am also experiencing hair loss. My rheumatologist assured me this loss was triggered by the disease GCA and not by my use of prednisone. The disease is a shock to the system resulting in hair loss.
Dear mlz,
Thanks for the information regarding how long it might take Kevzara to be effective. I was expecting a more rapid onset of action so will try to be patient. I hope getting off the methotrexate leads to some hair regrowth!
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1 Reaction@margedoc
I’m 32 weeks on Kevzara and have all my hair and more. It’s thicker too
@hughebo2 I don't have GCA, do have PMR and have been on pred since May 1st. My hair is very thin and getting thinner.
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2 ReactionsI was diagnosed in May 2025 by GP and rheumatologist. Pain started in the prior fall. I have tapered down to 5mg of prednisone and had to go back up to 8mg due to pain in hip. I am tapering again. I have lost at least 2/3 of my hair. My ponytail used be larger than a silver dollar diameter. It is now about the size of the diameter of a nickel! It has changed to being very dry and wiry. I sure do hope it grows back when PMR is done with me and looks healthier. Also, my rheumatologist said that prednisone does not make your hair fall out. Since being in this support group - I do not agree with her.
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4 Reactions@pbhorton Having some hair loss too and have read someone saying that it does grow back after ending prednisone. I sure hope so!
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1 Reaction@pbhorton I don’t agree with them at all. I had no issues with my hair until pred. I lost it to chemo some years back so I know how this feels. It’s due to the pred!!! People in this group say it will grow back. I’m down to 6 mg now. My fingers are crossed.
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2 Reactions@mezack25
Hair loss….i did loose it. However, when off prednisone it has comeback and thicker than before. I’m now 15 wks off Prednisone
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3 Reactions@tweetypie13 that’s real good to hear.