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Can Upper Airway Resistance Syndrome be so debilitating? What to do?
Sleep Health | Last Active: 5 days ago | Replies (17)Comment receiving replies
Hey, i have been suffering from uars for more then 2 years and lately it flared up and i feel extreme exhaustion and brain fog throughout the day and heart palpations and blood pressure drops with changes in posture, i tried cpap which did not helped me in the lower pessure and made my sleep worsier in the higher pressure, i also tried bipap (both from my own money thanks to "sleep medicine") which i cant tolorate and cant sleep with (i tried yesterday and was wide awake for almost two fricking hours with it) now i have another problem which i believe is possibly orofacial dystonia/tmj which is undiagnosed but it makes me not wanna even try mad plus it is expensive and wont be coverd by insurance for me, i found a sleep focused ent which is aware of uars and i thought about discussing with him the possibilty of doing srugeries but as i mentiond previously i have a undiagnosed problem with my jaw that im scared it could aggraviete so i feel really at lost since i am completely debilitated from how my sleep feels like right now...
Replies to "Hey, i have been suffering from uars for more then 2 years and lately it flared..."
Hello @ariza9110, You will notice that we merged your post with the following discussion that you started late last year so that other members who have been following your story can get an update and hopefully offer some suggestions from their own experience.
-- Can sleep apnea/Upper Airway Resistance Syndrome be so debilitating?: https://connect.mayoclinic.org/discussion/can-sleep-apneauars-be-so-severedebilitating/
I'm glad to see that you have already reconnected with @gloaming who has provided some great suggestions. As @gloaming mentioned about the ResMed machines, I got rid of both of my Dreamstation CPAPs when they had the recall and bought a ResMed AirMini with my own funds and have found it seems to work much better than either of my Dreamstations did. I definitely like the apneaboard.com site as there is some really good information and support.
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It sucks having to deal with several things that start knocking wheels off the bus. All at once.
This is one of those elephants that you have to set your jaw, bite down, and start grinding away at it one step at a time. Git 'er done. It might take a whole year to get you back to where you can sleep well for maybe 6 hours, but it is possible.
You need a good sleep specialist who specializes in both sleep disorders and with obstructed airway. You need to be properly fitted with a machine that will treat you and help you to relax and to fall asleep. Even so, not every sleep-impaired person can use a CPAP machine or an ASV (adaptive servo-ventilator). The other thing is that at apneaboard.com we routinely recommend RESMED machines over the others because their driving software is more responsive to the way humans want to breath. If you haven't gone there yet, please consider going to apneaboard.com and reading in. Find some threads in the column of titles of all the zillions of posts by people who are desperate for help because their providers/suppliers have run out of ideas or just don't care because they've already sold you a machine that may or may not be right for your apnea.