What happens when you stop taking anastrozole?

Thanks glad you are still doing well on letrozole

I’m a 7 year survivor this month. I started all the meds in line. 1st tamoxifen. That lasted a few months. Then rotated all the AI’s. None were tolerable to the point I didn’t want to live. I had a complete hysterectomy and mastectomy at the time of diagnosis at 52 yrs old when I was in perimenopause. Breast cancer was 3 with estrogen and progesterone positive , Her2 negative. I did chemotherapy but no radiation.
I have been taking daily , 300mg of Diindolylmethane (DIM) with piperine (black pepper) for all these years and I feel for me it works. My Oncologist is aware and supported my better something than nothing attitude.

Which Diindolylmethane (DIM) with piperine do you take? I want to ask my oncologist about this. Thanks!

I asked the pharmacist last week what I should expect if I do decide to quit. What he described was that I would feel "weird" for a couple of days, be tired and maybe have some brain fog. I haven't made the decision yet, but my husband and I are reading all the blogs. I have been taking it anastrozole for 20 months and am just now feeling the joint pain, developed a trigger finger, and I'm wondering what is next.

Anyone know how soon will my breast cancer come back? I stopped taking anastrozole after a few months because the side effects were so bad.

I have only been taking Anastrozole for 3 weeks. I have already started to have side effects like urinary incontinence which I had finally gotten under control before starting this. I also have very bad pain and stiffness at the base of my head and upper body where they meet each other. Had to take a muscle relaxer last night trying to free up the area. Not really helping so rubbing Aspercreme on and taking Advil. Has anyone else had this experience. Thinking I will stop this drug before things get worse. I'm more of a person who does natural remedies so looking to go that route even though my breast cancer with 100% Estrogen positive.

@cat168 I don't know but I have only been taking 3 weeks and deciding not to continue. Having pain down the back of my neck and getting so stiff having trouble turning my neck when I drive. Also causing me incontinence. I don't choose to live this way. Good luck to you. Its all about your quality of life.

I agree it’s all about the quality of life. I was really stiff too. It got worse every day. PT didn’t help. And I had to pee every hour or so. I understand the incontinence problem. It’s one of the listed side effects.
You would think they would learn to measure how much estrogen we have in our bloodstream and then give us a dosage inappropriate dosage, instead of giving us the highest dosage they possibly can and see if we live.

I meant to say an appropriate dosage

@cat168 So did you still continue to take the medicine or try something else? I'm afraid they all will have similar side effects. I'm thinking that I will continue taking Moringa as that is a cancer fighting herb that is even being studied now buy the NIH for possible cancer treatment. I'm going to hope that will be enough with healthy diet and exercise. I am 71 years old, like to walk, ride my bike etc. So physically I was in pretty good shape, but this is throwing me for a loop.