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Brinsupri follow-up
It seems a bunch of us have started Brinsupri. Let's use this thread for discussion. If you are taking Brinsupri have you noticed anything different, including changes to bronchiectasis or side effects? How long have you been on it?
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@kpger sorry to hear about the macular hole. While unlikely to know the cause your post caught my attention as I just found out I have a retinal tear. Not the same thing but coincidental. I’m not on Brinsupri but do use a vest along with nebuluzing and airway clearance. I stopped the big 3 in July so other than an inhaler, no other MAC meds currently. Are they doing laser surgery for you? Did they go over any restrictions post surgery or to avoid possible recurrence? Wishing you quick recovery.
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1 Reaction@kpger Is your blood pressure ok? Hypertension is listed as a side effect. Hypertension can cause blurry vision if it gets too high.
Just a thought. I imagine you'd have headaches, too, if it's too high.
Let us know what they decide.
@rosb Welcome!. I see this is your first post. Thanks so much for sharing your good response to the med!
I just started Brinsupri 4 days ago and now I think I have an upper respiratory infection. Running a low grade temp, more productive cough. My question is how should I treat this?
@cdward1028 What is your emergency treatment plan for exacerbations? If you do not have one, I suggest you contact your pulmonologist because we are not doctors here - just fellow patients living with Bronchiectasis.
Also, Covid, RSV, and influenza are "going around" - at least here in Minnesota - if the symptoms persist, maybe you could consider getting tested at your doctor's office or urgent care.
I’ve been in it for a month. I can’t tell if I am noticing a difference yet. I’m also more vigilant about airway clearance and twice daily neb/ saline treatments so it’s hard to tell. But I seem to be more tired and more gunky. Not sure what to make of it
@sueinmn I’m not asking for a treatment plan . My question was have others experienced an URI shortly after beginning treatment & if so is it like an old or more serious. I was only asking for experiences.
@cdward1028 I posted my experience with Brinsupri I believe somewhere in this thread. I’ll summarize: after about 3 weeks on Brinsupri I developed increased phlegm, increased cough and did not feel well. Dropped off a sputum sample which showed inflammation (polys 4+) but no specific infection. No NTM, no pseudo. Pulmonary decided to treat me with abx and I’m feeling better. From my understanding it takes several months for Brinsupri to stabilize in your system. Does this help?