Anyone lost the ability to walk due to peripheral neuropathy?

@jedge54
I also have CIDP as a complication of covid. Please let me know how the drug trial goes.

Good morning, @wenner

You say: "I even can't get into a lot of cars … " I had to tell a dear friend, who'd volunteered to drive to take us to lunch, that I preferred I drive and pick her up. She has a Mini Cooper, and I've tried before geting in and out of her car. With my PN, getting in and out of a Mini Cooper is a little bit like trying to put on and take off a pair shoes four sizes too small!

I wish you a good gardening day!
Ray (@ray666)

I like "neuropathy normal" I have difficulty walking, my ankles and lower legs are becomming more numb. I have pain and at night wear socks to bed because my feet feel so cold as if they will break off and then I wake and remove the socks because my feet are on fire. This is my neuropathy normal! I use a walker because I would fall otherwise. I do balance exercises but my balance is terrible. I also exercize at the gym three days a week. I am unsteady walking. BUT I do not take any medication. The reason for me is simple! The medication that is prescribed does not alieviate any of the problem. It merely works on the brain telling it the pain is gone or less. It dumbs down the person taking it. I would rather experience the above than be dummed down or be like a zombie. No meds for me. And I am grateful for PITA- my walker's name: (Pain In The Ass)!

@ray666 Wow! Someone on the same page as me. I'm moving to Yankee land tho, the Oz Doctors' took my licence and car from me back in February. I still have feeling in my feet, glass is still there and lots of fluid from toes to above ankle. I really miss my car. Have had lots of fun outings in "Maverick" the wheelchair, car is still far better. Re: My useless legs my theory is if I stop pushing them, they'll give up also. Still slogging away in the garden. Cheers Wendy @wenner

@ray666 Thanks for talking about the New Normal. It's very difficult for any of us to accept that this is the way we are right now. We might want to look at our lives and think about helps us cope with our situation and find what is still fulfilling and brings us joy. I'm 84, I've tried all the pills and treatments and I've accepted that I won't get better. I can't garden or ride a horse, but I can have a house full of flowering plants. I go the the gym three times a week and then come home and take a nap. I can't fly anymore, but we can take a road trip now and then. I don't mean to sound like goody-two-shoes, but this is what works for me. Some days, I get depressed some days, but i carry on. What works for you?

First drug FDA approved in 30 years since VYVGART HYTRULO
It its not an infusion..
Rather once a week injection.. Not a cure rather it slows the progression of the disease and hopefully eases symptoms.. Ask your Neurologist.. Feel better.

VYVGART HYTRULOFirst drug approved in 30 years since IVIG.

@carolynhughes75

I think I should start a new thread on my drug trial. Do you agree?

@jedge54