1. < Epilepsy & Seizures
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Anyone had temporal seizures but fully awake only can’t respond, move?

Posted by kdad46yr3kids @kdad46yr3kids, Aug 31 5:26am

I’ve had seizures for years but only first knew when responding to my daughter’s accident and visit to ER. Best place to have one but released 5 days later and after all tests no real results, medication, or diagnosis. That’s been 18yrs ago. Divorced for 10yrs so I had slight signs like bite marks on tongue and small blood on pillow case here or there but no none to ever really “confirm” since I lived alone. Then got married 8yrs ago, had back surgery to remove broke disc and had seizure and wife witnessed…I still don’t remember anything and no diagnosis or medication. So I stopped drinking, smoking, ate better, working out. Out of nowhere starting having things change like needing reading glasses when wearing my contacts, struggling with hearing, migraines, then starting noticing I could hear music at night when late and alone….i chalked it all up to getting older. Then about 5 weeks ago I started to shake uncontrollably late at night and tried to get to the couch. Couldn’t control myself hit the ground with full on seizure but eyes open and awake but couldn’t even respond. Went on and off convulsions for about an hour before my wife found me and called 911 when I started vomiting all over myself. Sent home next day and seemed like I was okay. Then 3 weeks later 3 am made it to bed and wife was watching TV and happened again. She stayed with me the whole time trying to calm me until I starting vomiting again and called 911, I was admitted, EKG, MIR, all types of tests and finally caught small specks in my temporal lobe connected to my new type seizures, given medication and claimed to have all the signs of classical temporal seizure disease….sound familiar to anyone else?

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Randy Shields | @randallshields56 | Oct 27 4:17pm
In reply to @randallshields56 "what meant on brain overload was my having to go back many years to try and..." + (show)
Profile picture for Randy Shields @randallshields56

what meant on brain overload was my having to go back many years to try and remember certain dates and times and locations, asked numerous questions before i could give out the previous answers. caused short circuit of sorts. The sun glasses just helped with keeping the strain off the eyes.

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thank you

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Randy Shields | @randallshields56 | Oct 27 5:07pm
In reply to @santosha "Hi @randallshields56 I could clearly feel a decline in my cognition and executive functions, which was..." + (show)
Profile picture for Chris Gautier, Volunteer Mentor @santosha

Hi @randallshields56
I could clearly feel a decline in my cognition and executive functions, which was later confirmed by my neuropsychological assessment. Since my diagnosis of temporal lobe epilepsy (left side), I've learned that this type of epilepsy can significantly affect cognitive abilities. Additionally, my EEG revealed epileptiform activity starting in my temporal lobe and migrating to my frontal lobe—the region responsible for executive functions such as planning, focusing, remembering instructions, and managing multiple tasks.
Have any of your EEGs shown epileptiform activity spreading from your frontal lobe to your temporal lobe? Have you had the opportunity to undergo a neuropsychological assessment?
Chris

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@santosha
no did not have the neuropsychological assessment. i had to struggle trough a lot of this with just the family and what they could catch when i had other appointments. had a lot of the same symptoms and the doctor said they would improve, they are returning just really slowly.

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Randy Shields | @randallshields56 | Oct 27 5:13pm

nothing here that would help. but will send ap prayer for you to find the answers and heal.

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Mentor
Chris Gautier, Volunteer Mentor | @santosha | Oct 28 6:10am
In reply to @gregd1956 "Dear @kdad46yr3kids xxx MY SEIZURE xxx I’ve been had/have seizure from 2012 and on. Everything,until a..." + (show)
Profile picture for gregd1956 @gregd1956

Dear @kdad46yr3kids

xxx MY SEIZURE xxx
I’ve been had/have seizure from 2012 and on. Everything,until a month ago, my seizure was on my brain & closed eyes and went to hospitals most 3-4 a year. My seizures are getting less each year. Thankfully, my meds helps me for the last 4 years and did not have seizures, UNTIL…

xxx A MTH AGO… xxx
A mth ago, forgot to take my 3 days meds (for anti-seizures). Well, that day, I had the weirdest seizure even get my eyes are open. My brain brakes to move my legs, feel, top body, but my eyes are open. I was looking to see of what doesn’t work. But I had to help my body, bit-by-bit. Well a few minutes after, I had to stand up from the ground and get something to drink and move my body to another place.

xxxTHAT WAS GREAT! xxx
That’s the first time to see of what way my problems. I was seeing and trying my body. This is the best was great ❤️

Thx,
Greg D. @greg1956

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@gregd1956
Good Morning Greg
I'm so sorry to hear that. Are your seizures back under control now?
@jakedduck1 started a great discussion earlier this year about strategies for remembering to take medications. You might find this helpful
How do you guys remember to take your medication?
https://connect.mayoclinic.org/discussion/how-do-you-guys-remember-to-take-your-medication/
Chris

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Mentor
Chris Gautier, Volunteer Mentor | @santosha | Oct 28 6:18am
In reply to @randallshields56 "@santosha no did not have the neuropsychological assessment. i had to struggle trough a lot of..." + (show)
Profile picture for Randy Shields @randallshields56

@santosha
no did not have the neuropsychological assessment. i had to struggle trough a lot of this with just the family and what they could catch when i had other appointments. had a lot of the same symptoms and the doctor said they would improve, they are returning just really slowly.

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@randallshields56
Good Morning Randy
I'm happy to hear you're improving little by little.
It might be worth considering this neuropsychological assessment to measure your progress with your treatment. Just a thought. Discuss it with your doctor.
Have a nice day!
Chris

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Randy Shields | @randallshields56 | Oct 28 6:39pm
In reply to @randallshields56 "welcome to the group, glad you got a second opinion, i had some frontal lobe seizures..." + (show)
Profile picture for Randy Shields @randallshields56

welcome to the group,
glad you got a second opinion, i had some frontal lobe seizures and came to realize it wasn't sleep related but that my mind couldn't process the information being thrown at me as fast as it was being given to me. basically brain overload on trying to process to much to quickly, my daughter bought me some sunglasses that cut the glare coming in from the sides which helped with not the eyestrain but mad my outside time much better. not sure if anything here helped , but i am hoping you have a blessed day.

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thank you

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