Anyone had temporal seizures but fully awake only can’t respond, move?

@santosha
Thank you for the encouragement I hate taking meds for sure. And no I haven’t done anything so far just trying to get this under control it’s new and definitely a shock to me.

welcome to the group,
glad you got a second opinion, i had some frontal lobe seizures and came to realize it wasn't sleep related but that my mind couldn't process the information being thrown at me as fast as it was being given to me. basically brain overload on trying to process to much to quickly, my daughter bought me some sunglasses that cut the glare coming in from the sides which helped with not the eyestrain but mad my outside time much better. not sure if anything here helped , but i am hoping you have a blessed day.

what meant on brain overload was my having to go back many years to try and remember certain dates and times and locations, asked numerous questions before i could give out the previous answers. caused short circuit of sorts. The sun glasses just helped with keeping the strain off the eyes.

Hi @randallshields56
I could clearly feel a decline in my cognition and executive functions, which was later confirmed by my neuropsychological assessment. Since my diagnosis of temporal lobe epilepsy (left side), I've learned that this type of epilepsy can significantly affect cognitive abilities. Additionally, my EEG revealed epileptiform activity starting in my temporal lobe and migrating to my frontal lobe—the region responsible for executive functions such as planning, focusing, remembering instructions, and managing multiple tasks.
Have any of your EEGs shown epileptiform activity spreading from your frontal lobe to your temporal lobe? Have you had the opportunity to undergo a neuropsychological assessment?
Chris

@santosha
I thought about a question on some of the comments I have received. A few people stated to stay awake later before an EEG but if mine are happening in my sleep around about same time and fee and far between would that actually help? And the only thing I have ever done is an EEG in 2023 and it came out fine.

No that sounds pretty scary. My wife has woke up to all mine so far mainly in my sleep. The other day I had an awake one at work but only couldn’t remember anything or reply etc. once passed I was fine had a small headache but glad to hear you got somewhat answers. Hope you continue to get better and hopefully someone will know better advice to give you.

@crissyh76
ou've brought up an excellent point that's very relevant to your specific situation.
There are many types of EEGs available, as explained on this Epilepsy Foundation page:
EEG Types
https://www.epilepsy.com/diagnosis/eeg
Perhaps a video EEG (done in a hospital for 1-7 days or longer) or an ambulatory EEG (which allows you to go about your normal activities at home while wearing the electrodes for 24-72 hours or up to a week) could be options worth exploring in your case.
I'd definitely recommend discussing these possibilities with your doctor to see what might work best for you.
Chris

Thank you for your kind words @crissyh76
The seizure you had at work sounds like it may have been a focal seizure.
I had similar experiences when I was younger with focal seizures (complex partial). My speech would be impaired for a few minutes and then everything returned to normal, occasionally accompanied by a mild headache, much like what you described.
Without knowing I had epilepsy or receiving treatment, my condition gradually deteriorated, with increasingly more seizures and extended recovery times. This highlights just how vital early intervention/treatment is. My epilepsy diagnosis didn't come until more than three decades later, which makes me thankful that you've received yours much earlier.
I'm sharing some information on focal seizures from the Epilepsy Foundation that might be helpful:
Focal Aware Seizures (Simple Partial Seizures)
https://www.epilepsy.com/what-is-epilepsy/seizure-types/focal-onset-aware-seizures
Focal Impaired Awareness Seizures (Complex Partial Seizures)
https://www.epilepsy.com/what-is-epilepsy/seizure-types/focal-onset-impaired-awareness-seizures
Which of these sounds most similar to the seizure you experienced at work?
Chris

Dear @kdad46yr3kids

xxx MY SEIZURE xxx
I’ve been had/have seizure from 2012 and on. Everything,until a month ago, my seizure was on my brain & closed eyes and went to hospitals most 3-4 a year. My seizures are getting less each year. Thankfully, my meds helps me for the last 4 years and did not have seizures, UNTIL…

xxx A MTH AGO… xxx
A mth ago, forgot to take my 3 days meds (for anti-seizures). Well, that day, I had the weirdest seizure even get my eyes are open. My brain brakes to move my legs, feel, top body, but my eyes are open. I was looking to see of what doesn’t work. But I had to help my body, bit-by-bit. Well a few minutes after, I had to stand up from the ground and get something to drink and move my body to another place.

xxxTHAT WAS GREAT! xxx
That’s the first time to see of what way my problems. I was seeing and trying my body. This is the best was great ❤️

Thx,
Greg D. @greg1956

thank you.