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MGUS Symptoms: What symptoms did you experience?
Blood Cancers & Disorders | Last Active: Oct 31 9:39am | Replies (117)Comment receiving replies
@pmm interesting that major surgery increased your level for a time. I’m facing left shoulder surgery in my future, of which I have been delaying d/t the long recovery time. For myself, my recovery, I’ve been told, will be longer b/c of my severe osteoporosis. I have a torn rotator cuff & my acromion process is substantially slanted instead of straight across in my shoulder.
Joy joy!
When the time comes for surgery I will remember your experience of increasing levels so I understand why.
My levels are low. Diagnosed 10/24, up coming bloodwork next month. Otherwise I believe I’m healthy enough for my age (68) but I admit there are times when I just feel very tired & unenthusiastic. As we are all wondering, what’s MGUS & what’s just older age. 🤷♀️
I am stiff in my joints when I first get up from sleeping or sitting too long but……..once I’m moving I’m fine. Pain is sometimes but not overwhelming or particularly a certain area except the shoulder.
I still work 2 days/wk but hope to decrease to 1 early next year. Love my job but it is very physical. (RN) Again, is my “discomfort” MGUS or just age & hard work all my life?
I’m continually researching whatever I can get my hands on and listing anything I feel pertinent to discussing with my PCP & hematologist.
Maybe I’m more the “pain” than my own physical pain! 🙂
J in Fla.
Replies to "@pmm interesting that major surgery increased your level for a time. I’m facing left shoulder surgery..."
@jdm02 you hit the nail on the head when you question symptom etiology. “Normal” aging vs MGUS symptom. Diabetes vs MGUS. Who knows?
Yes, others have spoken about their numbers increasing after surgery. I am not medically trained, but I subscribe to the notion that the body/mind experience surgery -related trauma. It plays havoc with our overall health. I know that anxiety alone makes me feel ill. Sometimes it even raises my white count as my body rallies against perceived illness. Before I understood MGUS, all I heard was the risk of MGUS progressing. The low risk of progressing didn’t register. I felt so sick.
Four years later I am stronger and better prepared emotionally to weather the storms.
I suffered a fall post-surgery and have been focused on my tears in my glutes. I know I did something to my rotator cuff as well but need to get used to my new normal as far as walking goes. Then I’ll get them to look at my arm. It hurts sometimes but I can’t imagine trying to work with a serious rotator cuff injury. Yikes! Yes, you need to be fixed.
Let me know how this goes for you. Fingers crossed that your numbers won’t increase, but keep in mind that they do sometimes fluctuate for no apparent reason.
@jdm02 I'm also 68 and wonder what is MGUS vs aging. I live in FL also.
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@jdm02
I am so glad to have found this forum for so many reasons. My husband has his own host of "odd" and rare health problems that we're dealing with that I've found a great deal of helpful info about here but I am finding out from all of you that my own situation regarding my MGUS is really becoming more and more defined by the symptoms we all seem to have in common. Although not as urgent as his are, they deserve a certain degree of better understanding and respect as they are very real. There is a definite common thread here that I think warrants further explanation.
Thank you all!!!