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Pancreatic Cancer Group: Introduce yourself and connect with others
Welcome to the Pancreatic Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with pancreatic cancer or caring for someone with pancreatic cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Volunteer Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Pull up a chair. Let's start with introductions.
When were you diagnosed with pancreatic cancer? What treatments have you had? How are you doing?
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@bobs1973 Hi and welcome to Mayo Connect? Do you know what type of pancreatic cancer he has? Do you know the type of chemo that he will be on?
We haven’t received his results as of yet.
Hello..thank you for the warm welcome! I believe it’s Adenacarcinoma but it has metastasized to other areas .im still processing this news having been advised late last night.
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2 Reactions@colleenyoung
Like magic, i couldn’t help but feel like i was at a concert listening to an orchestra led by a world renowned conductor. It was the entire presentation. Perfection at its best.
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4 Reactions@bobs1973 With your Mother having been diagnosed and passing from pancreatic cancer, did you or your Mother ever get tested to see if there is the presence of a germline mutations?
As for testing of offspring, the NCCN and ASCO guidelines do not recommendation testing until they become adults. Testing is recommended by NCCN and ASCO guidelines 10 years before a parent was diagnosed with pancreatic cancer. Should an offspring be confirmed as having a germline mutation, during the consult with the geneticist, a recommendation on frequency and type of surveillance that should occur.
Before anyone chooses to be tested, if a life insurance policy is not in place and it is of concern in having one, it should be taken out before mentioning to the policy provider about genetic mutations as it could result in denial of coverage or very high premiums with limited coverage if mutation status is made known.
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2 Reactions@colleenyoung My name is Ardith Bjorge. I was diagnosed in August. I just returned from Mayo Clinic Rochester to obtain more information. The only spread they found was a possible spot on a lung, which could be a nodule from my bronchiectasis disease. So this week I will be undergoing a broncoscopy to determine if it is cancer before possibly starting chemotherapy next week.
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3 Reactions@ardithbjorge, I'm glad you received a helpful reply from @demooretucson before your initial visit.
I can imagine you're concerned about the lesion they found on your lung. While I understand the anxiety, it is good they found it so you'll know what you're dealing with.
I appreciated getting your update and wait to hear about the results of the bronchoscopy.
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1 Reaction@mnewland99 That will be my new chemo regimen. I already lost a lot of weight and dread the loss of appetite. Thank you for posting!
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1 Reaction@jim1234 I agree as I started at stage 1a and now stage 4 due to mets to Omentum. Just want time. So sad for all of us with pancreatic cancer.
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4 ReactionsI'm sorry your cancer advance to stage 4. It's a terrible disease. Wish you the best with treatment.
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3 Reactions