How do you deal with dry eyes?

Posted by maryy @maryy, Jun 10, 2019

I have dry eyes due to sjogren's syndrome. Does anyone else deal with dry eyes?

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Profile picture for janieben @janieben

I have no idea if this would work for anyone else, but I had dry eyes last year for quite a while. My eye, especially my right one, was constantly tearing up. Very annoying!

I read a post on Facebook that a person used castor oil for dry eyes. I bought organic, cold pressed castor oil and started rubbing a drop or two into each eyelid each night before bed. Within a month, my dry eyes were cleared up, and it has not returned in a year. Like I said, it may not work for everyone, and I certainly am not giving medical advice. I am merely relating my own experience. If it helps someone else, great!

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My retina doctor said tearing is caused by dry eye and the body's response. I use warm compresses to soften the oil glands. You can buy them. Just pop in the microwave 18 seconds. Doc told me to do it 2x a day. Calming too.

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I use Ocusoft eye wipes after I wash my face; they seem to help increase mucus and supposedly decrease mites or whatever in eyelash follicles. Heated eye masks help to relax eyes. I use preservative-free eye drops when dry, and try to blink more. Dry eyes are a pain, and eyesight without the think coat of tears is worse. If you are working around dust, rinse your eyes with artificial tears afterwards (I'm sensitive to wood dust after years of not doing this).

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I've dealt with dry eyes for years, and it is not Sjogren's. It's Meibomian gland disfunction. I use the Systane wipes, which have some tea tree oil in them, which has been shown to kill demodex. But recently I was put on XDemvy, which is a new prescription med for demodex. It is drops you use for 6 weeks (because the life cycle of the mites is 3 weeks), and after years of suffering with the mites, they are gone! No more crusty stuff on my eyelashes every morning, and you can even see that the Meibomian glands are no longer swollen. The downside is that even after my insurance paid, the medication was very expensive. For me, with years of dealing with this, it was worth it. As a result, my dry eye symptoms are better, but not gone. So, I still use Xiidra drops, and Refresh Optive Advanced eye drops, which is what my ophthalmologist told me to use. Unfortunately, I still have symptoms. I play the cello, and I find that even with all of this care, about halfway through a rehearsal, my eyes become so dry I can't see the music. I've been told by my doctor that just like other sebaceous glands, the Meibomian glands produce less sebum every year, so I have to supplement with drops. Hopefully this helps someone.

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Profile picture for smernigegm @smernigegm

There are some meds I can’t just stop taking: hypertension, depression, diuretic, cardiac, etc. I have never been able to tolerate sun due to a 40 year period of migraine. You have some very good advice for others and much food for thought. Thanks!

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@smernigegm

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Profile picture for maryy @maryy

Thanks . I have Sjogrens Syndrome too, unfortunately. Do you take any medication for Sjogren? Methotrexate or Azathioprine?

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@maryy
I have dry eyes and mouth also. I have been using xiidra for eyes, and using xylimelts (ordered on Amazon) for dry mouth at night. They both are helpful but don't know for how long as I age. My auto immune doctor thinks I have sojren disease.

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Profile picture for po1958ling @po1958ling

@maryy
I have dry eyes and mouth also. I have been using xiidra for eyes, and using xylimelts (ordered on Amazon) for dry mouth at night. They both are helpful but don't know for how long as I age. My auto immune doctor thinks I have sojren disease.

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@po1958ling I used Xidra until cost was unmanageable. It definitely helped. With MS every tissue in our bodies dries out. Good luck and best wishes.

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Every year I told my ophthalmologist my eyes were terribly dry. This time I told him I have eye pain and my vision blurs so much while driving it scares me that I can’t read signs. He finally prescribed Xiidra drops and they work perfectly. I am supposed to use them twice daily but have found I only need them once, at bedtime. Why did he wait so long?

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I have just been diagnosed with dry eyes by an Optometrist. I have been prescribed eye gel to be used 4 times daily forever.

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Profile picture for biowicks @biowicks

I've dealt with dry eyes for years, and it is not Sjogren's. It's Meibomian gland disfunction. I use the Systane wipes, which have some tea tree oil in them, which has been shown to kill demodex. But recently I was put on XDemvy, which is a new prescription med for demodex. It is drops you use for 6 weeks (because the life cycle of the mites is 3 weeks), and after years of suffering with the mites, they are gone! No more crusty stuff on my eyelashes every morning, and you can even see that the Meibomian glands are no longer swollen. The downside is that even after my insurance paid, the medication was very expensive. For me, with years of dealing with this, it was worth it. As a result, my dry eye symptoms are better, but not gone. So, I still use Xiidra drops, and Refresh Optive Advanced eye drops, which is what my ophthalmologist told me to use. Unfortunately, I still have symptoms. I play the cello, and I find that even with all of this care, about halfway through a rehearsal, my eyes become so dry I can't see the music. I've been told by my doctor that just like other sebaceous glands, the Meibomian glands produce less sebum every year, so I have to supplement with drops. Hopefully this helps someone.

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@biowicks I've used Xdemvy and absolutely love it. My Demodex were gone but came back a few months later (I'm 75 and I've read that everyone over 70 has them). I'm now using them a few times a year. My dr said to do it twice in a row (12 weeks), but it'll be longer since there are extra drops in the bottkes). Yes, it's expensive but worth it!!

I wasn't aware of Xiidra but will definitely look into it. Thank you!!

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Profile picture for Karen @fue

I have just been diagnosed with dry eyes by an Optometrist. I have been prescribed eye gel to be used 4 times daily forever.

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@fue My son uses gel, but finds he sees through a haze. He’s mid-50’s.

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