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← Return to Pulmonary Fibrosis Meds
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Lung Health | Last Active: Nov 23, 2025 | Replies (34)
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@kdwhitfield Would you please explain your autoimmune features and elaborate on Cellcept? I have genetic pulmonary fibrosis, severe osteoporosis, and several digestive issues which are making some meds difficult to tolerate. I'm having blood work done soon to check for autoimmune disorders, specifically because of the osteoporosis, I think. Any info you can provide would be greatly appreciated. I couldn't tolerate Ofev and have recently had a sudden exacerbation of low oxygen levels and palpitations with mild exertion (I think due to a Prolia injection for the osteoporosis.) Only help has been rest and oxygen. Any suggestions?
Replies to "@kdwhitfield Would you please explain your autoimmune features and elaborate on Cellcept? I have genetic pulmonary..."
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@sis1259 My autoimmune features are evidenced through blood tests, and are not attributed to any other specific disease. My rheumatoid factor is high but I don’t have any real problems with rheumatoid arthritis. My pulmonary fibrosis is also hereditary. I also have big digestive problems: my hiatal hernia has been repaired but I still have GERD, gas, and bloating. Cellcept was chosen by my local pulmonologist after reviewing blood test results over two years ago. That was when my pulmonary struggles blossomed following Covid. Mayo Clinic pulmonologists have continued to prescribe it. I have been at max dosage over two years now, 3,000 mg daily. My only suggestion would be to make sure your pulmonologists know what and how you are feeling. At Mayo they want what is best for you and can do their best work when fully informed. Asking questions and advocating for yourself is good. I wish you the best.