Reclast and Tinnitus

Posted by barjcas @barjcas, Jun 7, 2023

Hello, I had a Reclast infusion and 24 hours later I started with Tinnitus. Has anyone else had the same experience?

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This is an older thread but just chiming in that after my first Reclast infusion at 20% dose, IV hydration and extremely slow infusion of the med, my tinnitus is still a lot louder the day after. I also have a headache, stomach pain, hot flashes, I'll post if the tinnitus goes back down. I doubt doctors will take this effect seriously but I do.

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I received Reclast almost 2 weeks ago. Within a day after, I have a loud noise in my ears. I’ve seen an ENT, he has me taking prednisone for a week. Not helping so far. Does anyone have advice if you’ve experienced this? Success stories of it stopping? I am scared of ever doing it again at expense of my hearing.

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Profile picture for sawyer16 @sawyer16

I received Reclast almost 2 weeks ago. Within a day after, I have a loud noise in my ears. I’ve seen an ENT, he has me taking prednisone for a week. Not helping so far. Does anyone have advice if you’ve experienced this? Success stories of it stopping? I am scared of ever doing it again at expense of my hearing.

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My tinnitus got worse after a low dose of Reclast but it went back to baseline in a few weeks. Your baseline is no tinnitus so I hope it goes away for you.

How much prednisone are you taking?

I have been told tinnitus is coming from the brain and there is no cure. But I have noticed that congestion, noise and other factors do make it temporarily worse.

I have become accustomed to my tinnitus and don't notice it until writing in a thread about tinnitus !

Keep us posted. This is an important issue for some of us!

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Profile picture for windyshores @windyshores

My tinnitus got worse after a low dose of Reclast but it went back to baseline in a few weeks. Your baseline is no tinnitus so I hope it goes away for you.

How much prednisone are you taking?

I have been told tinnitus is coming from the brain and there is no cure. But I have noticed that congestion, noise and other factors do make it temporarily worse.

I have become accustomed to my tinnitus and don't notice it until writing in a thread about tinnitus !

Keep us posted. This is an important issue for some of us!

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Hi
My tinnitus was very low until my 3rd reclast infusion. It's been a nightmare also getting vertigo. I will not do this drug again

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I have had tinnitus prior to Reclast, but has been worse since….not just at night. I will try the supplements that are specific for tinnitus. Dry eyes, mouth, and thirst have really increased at night and it has been 4 months since infusion.

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Profile picture for fjeldbar @fjeldbar

I have had tinnitus prior to Reclast, but has been worse since….not just at night. I will try the supplements that are specific for tinnitus. Dry eyes, mouth, and thirst have really increased at night and it has been 4 months since infusion.

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@fjeldbar Tinnitus Talk forum is a good resource. It doesn't seem there are any supplements that help for me, but let us know if you find one. Audiologists do retraining and might be of benefit.

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I just joined this group. I had moderate tinnitus before my Reclast infusion 7 months ago. My tinnitus following the infusion has progressively worsened. I now have very loud continuous tinnitus that even fairly loud noises do not drown it out. I have become very concerned/frightened. Does anyone know if the tinnitus will lessen when the Reclast wears off?

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Profile picture for windyshores @windyshores

This is an older thread but just chiming in that after my first Reclast infusion at 20% dose, IV hydration and extremely slow infusion of the med, my tinnitus is still a lot louder the day after. I also have a headache, stomach pain, hot flashes, I'll post if the tinnitus goes back down. I doubt doctors will take this effect seriously but I do.

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@windyshores After my first Reclast infustion, I experienced louder tinnitus that I had not noticed before as well as heartburn and hot flashes. Enocrinologist says never heard of tinnitus after Reclast and that the hot flashes cannot be related because the treatment is not hormonal. Going to ENT soon.

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Profile picture for barjcas @barjcas

Thank you!

My endocrinologist says it has nothing to do with the Reclast, but I find it hard to believe that 24 hours, almost exactly, after getting the infusion this started.

On another note, I am a kidney transplant recipient., 10 months ago.

My transplant dr. was able to find that it has happened to other people, but apparently not enough for it to be considered a side effect.

It may not happen to you. If there is an odd side effect I’ll get it.

Best of luck, B

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@barjcas I have never had tinnitus and I got recast yesterday and I got tinnitus last night and it doesn't appear to be going away.

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