Pancreatic Cancer Group: Introduce yourself and connect with others

Posted by Colleen Young, Connect Director @colleenyoung, Dec 3, 2019

Welcome to the Pancreatic Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with pancreatic cancer or caring for someone with pancreatic cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Volunteer Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Pull up a chair. Let's start with introductions.

When were you diagnosed with pancreatic cancer? What treatments have you had? How are you doing?

Interested in more discussions like this? Go to the Pancreatic Cancer Support Group.

56pan | @56pan | 1 day ago

In reply to @stageivsurvivor "@jim1234 Good choice on going to Froedtert to look into them. They have one of the..." + (show)

@stageivsurvivor I didn't see any info on exactly what type of exercise the participants were doing for CIPN?

56pan | @56pan | 1 day ago

In reply to @56pan "@stageivsurvivor I didn't see any info on exactly what type of exercise the participants were doing..." + (show)

@56pan

56pan | @56pan | 1 day ago

Disregard my question. Found it. https://www.google.com/search?q=Exercise+for+CIPN&oq=&gs_lcrp=EgZjaHJvbWUqCQgAEEUYOxjCAzIJCAAQRRg7GMIDMgkIARBFGDsYwgMyCQgCEEUYOxjCAzIJCAMQRRg7GMIDMgkIBBBFGDsYwgMyCQgFEEUYOxjCAzIJCAYQRRg7GMIDMgkIBxBFGDsYwgPSAQkzNjgyajBqMTWoAgiwAgE&sourceid=chrome&ie=UTF-8

dyas | @dyas | 1 day ago

In reply to @dyas "@colleenyoung Thank you 🙏🏻 so much Colleen. This note will mean so much to Sal. We..." + (show)

@dyas

excellent meeting. Would like to share with you. What would be the process for me to follow?

Thank you si very much.

🙏🏻Mort

Colleen Young, Connect Director | @colleenyoung | 10 hours ago

In reply to @dyas "@Dyas excellent meeting. Would like to share with you. What would be the process for me..." + (show)

@dyas, hi Mort. So glad to hear that the meeting went well. What did you learn that helped?

Colleen Young, Connect Director | @colleenyoung | 10 hours ago

In reply to @56pan "Disregard my question. Found it. https://www.google.com/search?q=Exercise+for+CIPN&oq=&gs_lcrp=EgZjaHJvbWUqCQgAEEUYOxjCAzIJCAAQRRg7GMIDMgkIARBFGDsYwgMyCQgCEEUYOxjCAzIJCAMQRRg7GMIDMgkIBBBFGDsYwgMyCQgFEEUYOxjCAzIJCAYQRRg7GMIDMgkIBxBFGDsYwgPSAQkzNjgyajBqMTWoAgiwAgE&sourceid=chrome&ie=UTF-8" + (show)

@56pan, I see that you linked to an AI response provided by Google Gemini. The information looks good. With AI-generated information, it is always important to fact-check. AI can look confident but answers are not always 100% accurate. Here’s some guidance about AI.

- What is Generative AI? What does this mean on Mayo Clinic Connect? https://connect.mayoclinic.org/blog/about-connect/newsfeed-post/what-is-generative-ai-artificial-intelligence-what-does-this-mean-on-mayo-clinic-connect/

You might also be interested in these related discussions where people are talking about neuropathy and exercise: https://connect.mayoclinic.org/search/discussions/?search=Exercise%20for%20neuropathy

@56pan, what type of exercise works for you?

56pan | @56pan | 9 hours ago

In reply to @colleenyoung "@56pan, I see that you linked to an AI response provided by Google Gemini. The information..." + (show)

@colleenyoung Sorry about the AI inclusion. I don't considerate it reliable either. Walking seems to help some with my neuropathy as it's attacked my lower legs badly. I've got a cane but don't have to use it yet.