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My mom has Polycythemia Vera: Can PV be managed without phlebotomies?
Blood Cancers & Disorders | Last Active: Oct 29 8:04pm | Replies (50)Comment receiving replies
@robinll If her hematocrit is still over 45 she’s only cheating her own health. That’s means her numbers will be even higher at her next labs and she could risk throwing a clot. Be careful.
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@nypara66 My hematologist is a young and very engaged man who I have great respect for but no, I haven't shared this cheating trick with him. He is not concerned with my MCH levels which have been running at 45.1 - 45.5. What he/we are greatly concerned with is the PLT count which was in the low 600 range a year ago until I started taking Jakafi then it shot up into the 1,050 range. Now we've got it down into the 700 range having gone back to Hydroxyurea. I've researched Besremi but don't like what I've read about the possible side effects. BTW, I'm 77 and considering I have PV, I'm actually doing quite well.