Anyone had temporal seizures but fully awake only can’t respond, move?

Hi @crissyh76
I'm happy to hear you already got a new doctor's appointment scheduled. Is this new doctor a neurologist and also an epileptologist?
As the Epilepsy Foundation article mentions, the likelihood of recording epileptiform discharges during a routine EEG is small. Therefore, some doctors recommend doing an EEG with sleep deprivation, as these are more likely than routine EEGs to show interictal epileptiform discharges. But most importantly, share detailed information about the events you've had with your doctor.
The first epileptologist I went to gave me the correct diagnosis of epilepsy and identified my type just by asking questions and understanding my events. I was amazed by her assertiveness about my diagnosis, even before looking at my test results. At that time, I already knew I had temporal lobe epilepsy through my first EEG with sleep deprivation ordered by another doctor.
As to cold medicines, it's known that some of them can interact with AEDs, increasing the risk of seizures. You mentioned you missed your medication at that time—but did you also take DayQuil and NyQuil? I've heard that these cold medicines can interact with AEDs, but please check this information with your doctor.
Wishing you a very good appointment with this new doctor, and send me your news afterward!
Chris

@crissyh76
As far as why you've developed epilepsy at this point in your life, you'll probably never know and it's better to accept the fact that you have seizures/epilepsy than to worry about why. 50% of epilepsy patients never know why they developed epilepsy.
You mentioned your seeing a new Neurologist. you really shouldn't expect your seizures to be controlled on your first medication and the first dosage. Although sometimes it does happen, but medication often needs a long time to change meds to increase doses and to add additional medications. That all takes time. I had uncontrollable epilepsy for 45 years and then when I was 59 years old, my seizure stopped. When I was put on a new medication because my previous medication became unstable. My new medication was an extended release formulation which I've never been on before and I believe that's what stopped my seizures, but of course I'll never know. Unless you weren't getting along with your previous Neurologist, I think you need to give them a chance to control them.
Like Chris (@santosha) said you shouldn't be driving, in fact, I suspect your drivers license has probably been suspended or revoked of course that depends on where you live. My brother had his first seizure while driving. He was driving a small sports car and ran head on into a large station wagon. His femoral arteries were severed, and both legs were severely crushed. He’s got metal from the waist to his feet. His legs are all metal. He wore braces and used crutches for a while, but is now in a wheelchair. My brother was lucky at least he survived.
As far as the DayQuil and NyQuil are concerned, you shouldn't take those unless you consulted your physician first since they contain several chemicals that can lower the seizure threshold. @crissyh76
As far as why you've developed epilepsy at this point in your life, you'll probably never know and it's better to accept the fact that you have seizures/epilepsy than to worry about why. 50% of epilepsy patients never know why they develop epilepsy.
You mentioned your seeing a new Neurologist. you really shouldn't expect your seizures to be controlled on your first medication and the first dosage. Although sometimes it does happen, but medication often takes time to change meds to increase doses and to add additional medications. That all takes time. I had uncontrollable epilepsy for 45 years and then when I was 59 years old, my seizure stopped. When I was put on a new medication because my previous medication became unstable. My new medication was an extended release formulation which I've never been on before and I believe that's what stopped my seizures, but of course I'll never know. Unless you weren't getting along with your previous Neurologist, I think you need to give them a chance to control increase, add or change medication.
Like Chris (@santosha) said you shouldn't be driving, in fact, I suspect your drivers license has probably been suspended or revoked of course that depends on where you live. In California where I live your drivage privileges will be suspended and a re-evaluation will be normally be ordered.
As far as why you've developed epilepsy at this point in your life, you'll probably never know and it's better to accept the fact that you have seizures/epilepsy than to worry about why. 50% of epilepsy patients will never know why they developed epilepsy.
You mentioned your seeing a new Neurologist. you really shouldn't expect your seizures to be controlled on your first medication and the first dosege. Although sometimes it does happen, but it often takes a long time to change meds or increase doses and to add additional medications. That all takes time. I had uncontrollable epilepsy for 45 years and then when I was 59 years old, my seizure stopped. When I was put on a new medication because my previous medication became unstable. My new medication was an extended release formulation which I've never been on before and I believe that's what stopped my seizures, but of course I'll never know. Unless you weren't getting along with your previous Neurologist, I think you need to give them a chance to control them.
Like Chris (@santosha) said you shouldn't be driving, in fact, I suspect your drivers license has probably been suspended or revoked of course that depends on where you live. When taking over the counter mads like antihistamines (Benadryl), decongestants and sleep meds you should ask your doctor.
I truly would recommend when you have your next EEG you stay up most if not all night before your test or ask the doctor since you've had normal regs if an ambulatory EEG would be better since they're usually done for 24 to 72 hours or more. Sometimes the abnormal brain waves are too deep in the brain for the surface EEG electrodes to capture.
How much Keppra are/were you taking?
Take care,
Jake

@crissyh76
As far as why you've developed epilepsy at this point in your life, you'll probably never know and it's better to accept the fact that you have seizures/epilepsy than to worry about why. 50% of epilepsy patients never know why they developed epilepsy.
You mentioned your seeing a new Neurologist. you really shouldn't expect your seizures to be controlled on your first medication and the first dosage. Although sometimes it does happen, but medication often needs a long time to change meds to increase doses and to add additional medications. That all takes time. I had uncontrollable epilepsy for 45 years and then when I was 59 years old, my seizure stopped. When I was put on a new medication because my previous medication became unstable. My new medication was an extended release formulation which I've never been on before and I believe that's what stopped my seizures, but of course I'll never know. Unless you weren't getting along with your previous Neurologist, I think you need to give them a chance to control them.
Like Chris (@santosha) said you shouldn't be driving, in fact, I suspect your drivers license has probably been suspended or revoked of course that depends on where you live. My brother had his first seizure while driving. He was driving a small sports car and ran head on into a large station wagon. His femoral arteries were severed, and both legs were severely crushed. He’s got metal from the waist to his feet. His legs are all metal. He wore braces and used crutches for a while, but is now in a wheelchair. My brother was lucky at least he survived.
As far as the DayQuil and NyQuil are concerned, you shouldn't take those unless you consulted your physician first since they contain several chemicals that can lower the seizure threshold. @crissyh76
As far as why you've developed epilepsy at this point in your life, you'll probably never know and it's better to accept the fact that you have seizures/epilepsy than to worry about why. 50% of epilepsy patients never know why they develop epilepsy.
You mentioned your seeing a new Neurologist. you really shouldn't expect your seizures to be controlled on your first medication and the first dosage. Although sometimes it does happen, but medication often takes time to change meds to increase doses and to add additional medications. That all takes time. I had uncontrollable epilepsy for 45 years and then when I was 59 years old, my seizure stopped. When I was put on a new medication because my previous medication became unstable. My new medication was an extended release formulation which I've never been on before and I believe that's what stopped my seizures, but of course I'll never know. Unless you weren't getting along with your previous Neurologist, I think you need to give them a chance to control increase, add or change medication.
Like Chris (@santosha) said you shouldn't be driving, in fact, I suspect your drivers license has probably been suspended or revoked of course that depends on where you live. In California where I live your drivage privileges will be suspended and a re-evaluation will be normally be ordered.
As far as why you've developed epilepsy at this point in your life, you'll probably never know and it's better to accept the fact that you have seizures/epilepsy than to worry about why. 50% of epilepsy patients will never know why they developed epilepsy.
You mentioned your seeing a new Neurologist. you really shouldn't expect your seizures to be controlled on your first medication and the first dosege. Although sometimes it does happen, but it often takes a long time to change meds or increase doses and to add additional medications. That all takes time. I had uncontrollable epilepsy for 45 years and then when I was 59 years old, my seizure stopped. When I was put on a new medication because my previous medication became unstable. My new medication was an extended release formulation which I've never been on before and I believe that's what stopped my seizures, but of course I'll never know. Unless you weren't getting along with your previous Neurologist, I think you need to give them a chance to control them.
Like Chris (@santosha) said you shouldn't be driving, in fact, I suspect your drivers license has probably been suspended or revoked of course that depends on where you live. When taking over the counter mads like antihistamines (Benadryl), decongestants and sleep meds you should ask your doctor.
I truly would recommend when you have your next EEG you stay up most if not all night before your test or ask the doctor since you've had normal regs if an ambulatory EEG would be better since they're usually done for 24 to 72 hours or more. Sometimes the abnormal brain waves are too deep in the brain for the surface EEG electrodes to capture.
How much Keppra are/were you taking?
Take care,
Jake

@santosha
Honestly no I didn’t check with anything on meds just assumed I shouldn’t take them together. I am hard headed and don’t like to take any meds prescribed or not lol. I am having a hard time facing this ordeal as it is due to nobody in my family that I know of has this issue. Found out in my 30’s I don’t know my who my father is. Also other than work the other day all have been at night in my sleep around 3/4am even with CPAP machine I sleep an average 6 hours or less nightly don’t nap etc. I M having a hard time accepting anything due to trying to do the right thing nd keep having troubles and making bills that are outrageous lol and new doctor did Evisit and going to try a new med and seemed very nice and hopefully will help get answers unlike the last one that stated I had a pattern. Thank you for your reply I highly appreciate it.

@crissyh76
Nocturnal seizures are quite common and perhaps were due to poor sleep. Nocturnal seizures often happen in the early morning when people are getting close to or waking up.
As you said, “you probably can’t answer,” you're right, and unfortunately, you'll probably never know. No one in my family was known to have seizures. Since I got them now my brother and his two kids have seizures too. None of theirs are nearly as bad as mine were.
It is ABSOLUTELY ESSENTIAL to take your seizure meds EVERY DAY WITHOUT FAIL.
teenagers know it all and I was no exception apparently and I decided I didn't need to take my medication and I started having recurrent seizures that would not stop. This is called convulsive status epilepticus and is a life-threatening condition. I ended up in the hospital in an eight-month-long induced coma which was the only way the doctors could stop the seizures.
When the doctor woke me up, I forgot every memory I ever had. I didn't know who my parents were. I used to play the piano when I got home. I didn't even know what the piano was. I didn't know anyone or anything. Take your seizure medicine regularly and don't let this happen to you. I stopped taking my medication and needlessly put my family through all kinds of grief. They were called to the hospital three times with doctors saying they didn't think I was going to make it through the night. Take your medicine regularly and don't chance putting your family through such agony. Believe me, if you accept your condition and accept your new normal your life will be happier and more fulfilling and productive even though their may be challenges that may occur.
As far as driving is concerned here in California doctors are required to notify DMV.
Do you know what medication you're switching to? I'd be curious as to why the doctor wants to switch from Keppra instead of trying to increase it. Did the new doctor tell you what type of epilepsy you have?Where your seizure focus may be (where seizures originate.)
Take care,
Jake

Hi @crissyh76
I'm very happy to hear you had a good appointment with your new doctor.
Getting an epilepsy diagnosis is never easy. I struggled after my diagnosis and during early treatment. Accepting my epilepsy and its impact on my life took some time. An excellent neuropsychologist was invaluable in guiding me through that process.
I agree with @jakedduck1—focus on your treatment, getting well, and getting your seizures under control rather than on what caused your epilepsy. Nobody in my family has epilepsy either, and as I've learned, about 60% to 70% of people with epilepsy don't have a genetic cause.
What medication did your new doctor prescribe? Did they provide any new information about your diagnosis?
Chris