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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: 17 hours ago | Replies (1110)

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Profile picture for carolduggan @carolduggan

I was diagnosed with MGUS in 2014 when I was 47. In 2015, I developed chronic hives that lasted a year. In 2020 I had chronic hives again that lasted about a year and in March of this year I broke out again and am still dealing with them everyday. People with MGUS who have other symptoms and develop hives are diagnosed with Schnitzler Syndrome. My allergy specialist doesn’t think it’s related to my MGUS because I don’t have the other symptoms. I have never had hives until I was diagnosed with MGUS. I have been tested for autoimmune diseases and they all have come back negative. I am so frustrated that they can’t figure out what is causing my chronic hives. Does anyone else with MGUS have chronic hives and doesn’t have a diagnosis for them?

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Replies to "I was diagnosed with MGUS in 2014 when I was 47. In 2015, I developed chronic..."

@carolduggan, welcome. Using search terms MGUS and hives, I found these comments from other members:
https://connect.mayoclinic.org/search/comments/?search=MGUS%20and%20hives
How do you manage the hives when you experience an outbreak?