4 stents later and still have shortness of breath

Posted by gerrycf @gerrycf, Jul 9, 2024

Has anyone had shortness of breath and some chest pressure, 99% of the time upon exertion, EVEN AFTER, having 4 cardiac stents in the LAD artery? I have met with 3 pulmonary specialist who advised my lungs are fine and it's not my lungs. I have had 4 catheritizations in less than 2 years, 2 of which they inserted 2 stents each time and 1 of which caused a femoral artery dissection (right groin) and 1 which was last August (in arm which spasms), said no need for any other stents at this time. 4 cardiologists later, I'm at a loss! I'm frustrated, fatigued, gaining weight, losing my hair and very frustrated. Are there any other tests that can be done that are not invasive? recent stress tests (nuclear and exercise) seem to be considered normal. Echo shows only mitral valve moderate regurgitation and mild tricuspid regurgitation. Cardiologists said he will do another angio "If I want". If I want? Not sure what to do! Still on plavix, aspirin, metropolol, imdur, losartan, repatha.

Interested in more discussions like this? Go to the Heart & Blood Health Support Group.

Profile picture for gerrycf @gerrycf

Finally, 8 cardiologists later, 5 catheritizations later, a femoral dissection, and so many tests that I should be glowing in the dark soon, I have a diagnosis! I just want to mention, you just have to be your own advocate! I had requested a cardiac MRI for so long to several of the cardiologists and the doctors simply let their ego get in the way and some thought I was an "anxious" woman! I finally insisted/demanded a cardiac MRI, even after a Cardiac PET stress test came back normal only 3 months earlier, as I had to wait 2 months to even get the appointment for the Cardiac MRI stress test which results show cardiac microvascular disease/dysfunction over a large portion of my heart. So much wasted time, frustration and stress (by the way, stress is the worst thing for MVD!) I'm going to search for a group in these forums, but wanted to follow up here.

Jump to this post

Clearly your physicians did a lot of testing for different things. Any idea why they would not do the Cardiac MRI stress test? Was it an insurance "decision" (in quotes because that's the tail wagging the dog), or a medical decision?

REPLY
Profile picture for gerrycf @gerrycf

How are these checked: aortal valve? septal hole? infarct leaving the muscle weakened, etc.?
I keep saying it feels like a pulled muscle. ???
thyroid levels normal; endocrinology - bloodwork normal
no never checked for sleep apnea.

Jump to this post

I just started having shortness of breath when exercising and it feels like my heart is fluttering or like my lungs are heavy. My primary doctor ordered a stress and electrocardiogram testing for me. I’m going to be 70 in October. Sounds like I have what you have. My doctor thinks it’s an electrical issue. I’m on zetia and Lipitor and not overweight. I don’t drink or smoke. How painful are the caths?

REPLY
Profile picture for rexm @rexm

Clearly your physicians did a lot of testing for different things. Any idea why they would not do the Cardiac MRI stress test? Was it an insurance "decision" (in quotes because that's the tail wagging the dog), or a medical decision?

Jump to this post

@rexm - No not at all... I have great insurance. I was told by more than 1 dr. "I know what I'm doing"! Honestly, I believe it was an ego thing.... and not to point fingers... but they were men and I felt they were dismissive to me and my symptoms. They were ALL testing for why I still had such shortness of breath and chest pain/pressure. Hence the 5 caths and a femoral dissection as a result of 1 of them! I went to 2 pulmonary specialists who tested me extensively and my lungs were fine. However, my new cardiologist, since February, is a woman cardiologist, and she ordered a PET cardiac stress scan and it was "normal" and that's when I insisted on MRI cardiac stress and she "slightly" hesitated with a response, "I'll try to get authorization" and I immediately said I don't need authorization - please order it now and that took 2 months to get an appt. Now she said "Good thing WE ordered an MRI"! lol AND there's no explanation from PET Scan radiologist why it did not show up on that test and it should have.

REPLY

So do they know what is causing the shortness of breath?

REPLY

Yes, Cardiac Microvascular Disease is the most likely culprit. My stress test in July showed a blockage, but my cardiac catheterization in September showed my arteries are nay 30% blocked, so they didn’t put n a stent. When I asked what was causing my symptoms, they said probably “small vessel disease,” another name for CMD. I have the same symptoms you do.

REPLY
Profile picture for riflemanz64 @riflemanz64

I just started having shortness of breath when exercising and it feels like my heart is fluttering or like my lungs are heavy. My primary doctor ordered a stress and electrocardiogram testing for me. I’m going to be 70 in October. Sounds like I have what you have. My doctor thinks it’s an electrical issue. I’m on zetia and Lipitor and not overweight. I don’t drink or smoke. How painful are the caths?

Jump to this post

@riflemanz64
I recently had a Cath and it was easy, quick and rather painless. Went home a couple hours later.

REPLY
Profile picture for gerrycf @gerrycf

@rexm - No not at all... I have great insurance. I was told by more than 1 dr. "I know what I'm doing"! Honestly, I believe it was an ego thing.... and not to point fingers... but they were men and I felt they were dismissive to me and my symptoms. They were ALL testing for why I still had such shortness of breath and chest pain/pressure. Hence the 5 caths and a femoral dissection as a result of 1 of them! I went to 2 pulmonary specialists who tested me extensively and my lungs were fine. However, my new cardiologist, since February, is a woman cardiologist, and she ordered a PET cardiac stress scan and it was "normal" and that's when I insisted on MRI cardiac stress and she "slightly" hesitated with a response, "I'll try to get authorization" and I immediately said I don't need authorization - please order it now and that took 2 months to get an appt. Now she said "Good thing WE ordered an MRI"! lol AND there's no explanation from PET Scan radiologist why it did not show up on that test and it should have.

Jump to this post

@gerrycf - What was your treatment following the MRI? I had a similar issue but with 3 severe blockages. I ended up having a Angiogram-Complex PCI with lithotripsy, medicated balloons, and medicated stents; restored blood flow to 100% at all three blockages. Interventional Cardiologist did my PCI and I avoided a double bypass, which was great with me! I hope you are doing better and am interested in what your f/u treatment was. Thanks.

REPLY

Is there any cardiologist you think is better? Then contact that doctor for a new visit or another hospital with a different cardiologist. Your lungs are good which shows you didn't get a blood clot there during your surgery which is good. Your shortness of breath is due to your heart, you may have had heart failure after the surgery and/or leakage at your operated stents which sounds most likely. Follow up with the cardiologist you trusted the most and request an examination of your heart with, for example, an ultrasound and ECG (electrocardiogram)! Stand up! Hugs!

REPLY

Mitral valve can cause SOB…what about an echocardiogram to check on the mitral valve…? I am a doctor but not an MD. Have refractory angina…I can relate. 🙏🙏🙏

REPLY
Please sign in or register to post a reply.